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17 year old just diagnosed with hemiplegic migraines

After a stay in a children's hospital, my grandson has been diagnosed with hemiplegic migraines. He has suffered with migraines for a few years now, but after the first hospital thinking he was having a stroke, they moved him to a children's hospital. I would appreciate any suggestions or advice for him. He will be taking topamax when he gets out of the hospital today. Thank you for any help I can share with his mom and day.

  1. sorry, my grandson is 17

    1. I’ve had hemiplegic migraines since I was 12. I too was hospitalized for 3 days because they thought I was having a stroke. Interestingly enough that was over 50 years ago. My daughter ( 32 years old) also has these occasionally. I now have chronic migraines and migraines with aura but have not had an actual hemiplegic migraine for several years. The best suggestion I have is figure out what triggers yours, make sure you get enough sleep, eat regularly and stay on a consistent schedule. For me my trigger is flashing lights like someone taking my picture with a flash or sunlight glinting on a car window. My daughter is always triggered by strobe lights or police flashing lights. When I was younger there was no medication and I was out of commission for the rest of the day and often needed someone to drive me home. With current medications I can take something and get back to work in an hour or two. I have not let it interfere in anything I do but I ALWAYs carry medication with me! I hope this helps!

      1. I'm sorry your grandson is dealing with this, but it's good that he now has a diagnosis. Here's a great article from our site that discusses hemiplegic migraines. I hope you find it helpful.
        April - Team

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