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Aimovig

So, I’m devastated bc I’ve had no migraines on Aimovig. It’s been the best few months ever of not needing any headache/migraine medications at all. However, my hair is falling out severely. It’s the only medication I take so I know it began about two weeks after my first injection. Now, with the second injection, it’s much worse. I don’t know what to do. I’ve heard others say this is a potential side effect of the other injection options. I’ve gained about 3-4 lbs as well but I would take that over the hair loss. Has anyone felt like it lessened over time or does it just keep getting worse? At this rate, I won’t have much hair. I would love to hear from someone who can tell me when it started to slow after they stopped taking the injections. I’m stuck between do I just get a wig and have no migraines or go back to meds that aren’t totally effective? The one thing I haven’t tried is Botox injections.

  1. Hello jna1, thank you for reaching out. I hear how discouraging it feels to find a treatment that helps manage your migraine symptoms only to have the side effect of significant hair loss. You are not alone having this experience and feeling caught with what to do going forward. I thought you might be interested in reading through this forum discussion where many have shared their experiences with Aimovig and hair loss: https://migraine.com/q-and-a/hair-loss-aimovig/ It might offer you a few perspectives as you consider what choice feels best for you. Please keep us posted on what you decide to do and how you are feeling. Wishing you a gentle day. ~Allyson (Migraine.com team)

    1. Hi .

      I'm so sorry that you're experiencing side effects with what feels like an ideal migraine treatment! I have some other chronic illnesses where hair loss is medication side effect, and something I have come to swear by is taking prenatal vitamins - just for the hair and nail strength it returns to me. I have tried biotin in the past without much luck.

      I hope that the forum Allyson shared also helps you connect with other Amiovig patients.

      Warmly,
      Amanda (Migraine.com Team)

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