CommunityMember2396
Hello,
I'm a long way down the line with long term chronic migraine / face, neck, jaw, upper spine.
- Seen Dr Matharu neurologist in London and tried botox with no success.
- Tried most of the pain clinic drug, nerve block etc with no luck.
- Did feel much better with HRT and medical cannnabis, until I caught covid. Now feel in awful pain, had temporary vision loss. Clear MRI. Terrible tinnitus and throbbing head/ face / jaw.
I'm weirdly sweaty with pain.
Just wondered if anyone else has had success with medical cannabis or anything please - feeling desperate!
Thank you x
Holly Harding Moderator & Contributor
I appreciate you outlining various approaches you have tried. I'm curious if you've tried any of the CGRP treatments yet (Emgality, Ajovy, Aimovig, Nurtec, Ubrevly, Qulipta, etc)? These are relatively new but have a good success rate and would be worth discussing with your doctor if you've not already. They come in various forms (monthly injection, daily tablets) and are available both as prevention and rescue approaches. Here's more information on this type of treatment: https://migraine.com/cgrp-new-direction-migraine-treatment.
Also I don't think you mentioned trying a triptan (imitrex, maxalt, relpax, etc)- but perhaps you already have. If you'd like to peruse the current general offerings of preventatives and rescue treatments, this interactive page can assist you: https://migraine.com/treatment-options.
I hope this helps you. We are here to provide support and information anytime. Most of us here are also living with migraine- you are not alone in this - we are here for you and with you. Warmly- Holly -migraine.com team.
CommunityMember2396 Member
Nancy Harris Bonk Moderator
Thank you for reaching out and sharing your journey with us. I understand feeling desperate, it's miserable being in pain all the time.
I see you mentioned you live in London. Are you familiar with this site; https://migrainetrust.org/? They have lots of good resources. Please let me know what you think and I'm wishing you a low pain day, Nancy Harris Bonk, Patient Leader/Moderator Migraine.com Team
CommunityMember2396 Member
Nancy Harris Bonk Moderator
My pleasure! I did have a medical card here in NY, and purchased it through a medical dispensary, and is not cheap.
I wound check out The Migraine Trust - they have great info!
Hope today is a lower pain day, Nancy Harris Bonk, Patient Leader/Moderator Migraine.com Team
cordelia Member
Hi! I have found that it's difficult to find a consistent cannabis dosage. Some strains hit me stronger than others and it causes a rebound headache. I also wind up with dizziness, possibly due to lowered blood pressure. So what I do is take the teeniest possible dosage for relief. Maybe that will help. Another thing I do is try to find a different strain or strength of cannabis. There seems to be quite a range. Best of luck.
CommunityMember2396 Member
Holly Harding Moderator & Contributor
MMS1956 Member
Hi,
Daily chronic migraines are no fun. I’ve been having them for over 12 years now. I was forced to retire at 55 because of them. Some days the pain is almost unbearable especially if it’s been like that for a couple of days in a row. I have the benefit of my Tramadol and marijuana. On my worst days I use my maximum of the pills and smoke a big fat one. It zones me out and usually puts me to sleep. The rest of the time when it’s not as acute I just use my meds and try to sit outside in our backyard in a comfortable chair in the shade with my dark sunglasses on and just try to escape into the nature for a while. I’ll vape a little bit of “the demon weed” and try to relax. I guess I’m lucky to live in Canada as the marijuana is 100% legal for recreational use or medical. It’s terrible in the USA that the government is so much in the pocket of big pharma but some states have decriminalized it and also approved it for recreational. The weed doesn’t work too much for the pain but it helps put me in a happier state. Hang in there. I know some days are much harder than others…I also try to think that there’s a lot of people that are far worse off than myself. I’m not a religious person at all but nature is a true healer. Force yourself to get outside and take whatever gives you comfort with you. Eg….an ice hat, a book, music, a favourite drink, a joint. lol.