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Feeling Sick...all...the...time

I had my first migraine when I was 8. I was told I was starting puberty and to expect them to last for a few years. At age 11, they slowed down considerably. At 20, I was diagnosed with cluster headaches with migraine like symptoms. I had my first daughter at 28. At this time, all headaches, migraine or any other kind, basically stopped. I went almost 10 years with only minimal, mild headaches.

Over the last 3 months (now 38 ), symptoms have returned. Not only am I having multiple clusters of migraines that last for a week or more, I'm plagued with mild headaches in between and I feel sick all the time. Sick as if I'm coming down with something, but I'm not. I've been Covid tested - always negative. I've recently had a ton of bloodwork- all normal. My menstrual cycle has been off, which I'm under the care of my gyn for and waiting some test results, but I feel this may be the culprit.

I have searched articles and the forum about others always feeling sick and have found quite a few people who experience the same. Mild runny nose, aches, joint pain, fatigue, and of course head pain. It shows up out of nowhere and can disappear just as quickly; however, I'd have to say I feel badly more than I feel good. Its exhausting. My husband does his best to understand and be helpful, but truthfully, if you haven't experienced it you'll never really know.

I'm at my wits end and just needed to air out my emotions. I thank you all who took time to read. Hopefully the results I'm waiting for will help. If not, I will be back to the neurologist soon.

  1. @taronea, thank you for sharing this with us. I hope that you find answers to your questions soon. I know that these symptoms can be so frustrating, so you are always welcome to vent here. I am glad that your husband is supportive and understanding. Please know that we are here to support you too. Keep us posted on what you find out if. We will be thinking about you. Hugs, Shayla (, Team Member)

    1. Thank you for sharing your experience with the community. I am sorry you are experiencing that constant felling of general unwellness. I also understand how frustrating it can be to have so many tests and have no real answers coming your way. I hope your Gyno will be able to shed some light on your symptoms. I'm glad you had a chance to vent and get these feelings off your chest! We are here for you whenever you need us. Warmly, Cheryl team

      1. I hear how exhausted you are! It's maddening to feel off every day, especially when you don't know why. We can't give medical advice for your own safety, but given your life history I think your suspicion of hormone involvement is a good one here. Are you working with a neurologist or, better yet, a headache specialist? While neurologists focus of a variety of conditions, headache specialists are certified experts in migraine. It is a good idea to see if there is one in your area -- many also offer consults via telehealth.

        Here is a link to a US directory you may find useful:

        And an article that breaks this down in more detail:

        We're rooting for you and here to help however we can! Keep us posted. -Melissa, team

        1. I have not seen a headache specialist, and honestly didn't know they existed until reading about them in articles here. I have seen a neurologist in the past, but he has since retired and because I was in a good place at the time I haven't found a new one yet. I will bring up the idea of a specialist at my next appointment and see if I can get a referral. I believe there are some within an hour of me...worth the drive and time if I can get some answers.

          1. Finding a headache specialist is a great place to start on your road to getting some clarity and hopefully answers to your migraines. We were fortunate to find two excellent headache specialists about an hour away from where we live in Florida. I would definitely use the link Melissa provided you within the above comment so that you have a good idea of who you might like to see before going to see your referring doctor. It will also give you a chance to research your prospective specialist and see if they might be a good fit for you. Warmly, Cheryl team

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