I've suffered from migraines for two years now. Three MRIS, CT scans, Lumbar punctures and medications with over 20 side effects that add up to about four thousand dollars for what? An Unspecified Migraine Diagnosis, says the joint efforts of my primary physician and neurologist.
I can spend up to seven days in the dark, praying it will stop wondering sometimes, what's my quality of life? I told this to my neurologist and he didn't seem as phased you should think. He did tell me with my prolonged sessions he can prescribe prednisone to 'kick it in the ass'. At least there's that. I was put on Topamax in hopes of deadening the nerve endings, and told he was no longer going to be seeing me.
Is that really it? Am I stuck taking medication with side effects for the rest of my life that SOMETIMES help? I've been thrown into a scary world where for the first time Drs. can't help me.
I've met other migraine suffers, who have experienced nerve damage due to some 20+ years of migranes. She too was told, you just get headaches some times, and she dealt with it for over twenty years. Now she just goes blind sometimes. She's considered 100% disabled because she never knows when she's going to get a migraine and go blind. Is this just an extreme case or can I look forward to damage due to my Unspecified Migraines?
I am glad I've found this site. I need you All.