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Feeling Alone and Seeking Answers

I've been really doing some digging recently trying to pinpoint triggers and causes for my excruciating migraines. Unfortunately I don't have a formal diagnosis because of lack of healthcare coverage. I've been reading a lot. I wanted to share this article. I found it inspiring. Id love to hear of any recommended reads from folks here as well!

“True Confessions of A Migraine Sufferer” by Jme Golob https://link.medium.com/8A1bgNxmQ8

  1. Hi @Jbrown777,

    Thank you for sharing your thoughts and that article with us. I wanted to let you know you are not alone!! Over 40 million in the US have migraine disease and many more are undiagnosed. We have lots and lots of information to read here on Migraine.com, grab a chair and make yourself comfortable! We're here for you!!!

    Trigger identification and management is a key component of a migraine plan. One of the problematic things about triggers is (there are many) they can change over time. Raw onions, taste or smell, didn't bother me until a few years ago. And triggers can be cumulative - here's what I mean. Let's say one night we don't sleep well, (interrupted sleep patterns can be a migraine attack trigger) wake up and carry on with the day, without a migraine attack. However the next day, a storm front moves in, we don't sleep well again, have a glass of red wine, and BAM we get hit with a migraine attack - our triggers accumulated enough to trigger an attack. There are a number of apps to help identify and manage triggers, and of course some triggers are unavoidable, like changes in the barometric pressure and fluctuating hormones. And some people with migraine are fortunate enough not to have food triggers.

    I hear you on lack of insurance coverage. The thing about any disease is getting an accurate diagnosis is vital so we can learn about it and get the proper treatment. There is so much to migraine disease!! Having said that, a good place to start off learning about migraine disease is https://migraine.com/migraine-basics/.

    I'm going to stop now so I don't totally overwhelm you! Let me know your thoughts?

    Wishing you a low pain day,
    Nancy Harris Bonk, Patient Advocate/Moderator

    1. Thank you for taking the time to comment.. I really do appreciate it! Than you for the link as well.. I'm going to check it out right now ❤️

    2. Great, @jbrown777,

      Please let me know what you think!!

      Nancy

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