Headache will always be in my life

Hey there 😀. Welcome to Migraine.com and sharing your story with us. It takes a lot of courage to post and express what you've been going through. Please know that you are not alone with any of this, and that there are many people in this community who can resonate with your experience.


I know right now it may feel like things are bleak, but there is hope that you will find a treatment method that helps you cope with your migraines. Have you considered seeking a migraine specialist if all the doctors continue to diagnose you with migraine? They may be more equip to help you than a doctor who practices general medicine.



It's also perfectly okay to take things one step at a time until you find a solution to these migraines. It does not have to define your life, and there is hope that they will reduce in severity or frequency with the right treatment.


Wishing you well, and thank you for posting. - Cody (Team Member)

Hello dearheart. I'm SO glad you opened up to us to share some of your journey. You are among friends here who can relate and understand. Most of us here also are living a life with migraine and, like you, trying our best to manage the complicated pain and symptoms that come with it. Finding the best combination of treatment strategies that can decrease the severity and frequency of attacks can take so much energy, time, and determination. This can be difficult when migraine depletes us of those very things! And, as you said, migraine can deplete us of our weight as well- which can make it difficult to feel stable and strong.
I would encourage you to seek solutions when you have the energy to do so and also to give yourself permission to rest and care for yourself when that energy is low or when you find you are on empty. As you have already learned, it takes a lot just to explore treatment solutions sometimes. This piece may resonate with you regarding the process involved in trying to find relief: https://migraine.com/living-migraine/trying-new-treatments-beginning-stages.
It sounds like you have a number of challenges that make it difficult to even attain new treatment approaches. Finding a migraine specialist in another country- someone to travel with you, all while navigating the challenges of migraine - it's a lot! That said, there are a lot of treatment options out there. For most of us, we have to find more than one treatment to combine with another to find our best chance of relief. Pace yourself, but keep going when you are able. Here is a resource that covers current treatments (preventative and rescue): https://migraine.com/treatment-options.
We are here for you - to provide support, information, and compassion. We are sending you love and warmth and hope you'll keep in touch. Warmly- Holly -migraine.com team.

Hi CommunityMember8422330
I feel devastated for you as I can feel your pain. I have suffered migraine since the age of 10...I am now 54.
I just wanted to offer you some words of support:
1. Keep trying to find a remedy to help manage the pain. Whilst there is no cure , there is management.
You will find that it will not just be one solution but a toolkit. For example , I have been using Triptans for years. Alongside I also keep voltarol suppositories, buccastem and aspirin ( not taken all at once). I find different pain relief works at different times. I recently started rimigepant (crgp). I also have a Cefaly device which is helpful. I keep a tie ( my husbands) which I tie around my head to help reduce the pressure. And cool strips in my handbag. I also make sure I have snacks in my car and bag as low blood sugar is a problem. You will find your toolkit.
2. Take time on being aware of what the triggers might be? Have you changed something in your life?keep a strict diary of what you do and what you eat/drink, even note what type of body products you are using. The pattern will emerge after 3 months. Perhaps you already know what your triggers are. Look for peculiar stuff in your environment. It's surprising what can cause migraine. I have a huge list of triggers. And as a result people perceive me as a fussy person , but I have to avoid alot of everyday stuff.
3. If you are using a computer screen regularly as most young people will, then ensure that you have glasses with the filter to help ease the strain.
I have a tint on my glasses..FL40.
4. Look beyond orthodox medicine. You might find solutions within the complimentary therapy world. You may possibly need a multi disciplinary approach to managing your health.
5. As for studying, I struggled. However I did go to university and do well. This came down to organisation. I always planned and prepared in good time. I never left anything to the last minute. My assignments were in before the deadline. I paced myself well. The down side was that I could not party with my friends as late nights and alcohol was a definite trigger. The sacrifice was worth it. One if my strongest skills is the ability to plan and organise as a result of being a sufferer. I use those same skills in my role as a director.
6. Once you have your triggers pinned down , you can work on management. This will give you good days in between. And those good days are important to use to the full extent. Try to make sure that you do one thing which makes you happy on a good day. That will help you get through. It gives you some quality of life and helps in preventing mental health issues such as depression.
7. Finally, after 4 decades...I can say that the migraines change over time as life is dynamic. You may go through good years and then have a slump or you may just see an improvement altogether. What ever happens, just keep your toolkit and ensure that you have the right people around you to support you.


I hope you find the right toolkit which helps in reducing your pain. It's not easy but keep hope.

Hi Holly
Thankyou for your message. Here is where I might show my age but how do I re-post a message?
Happy to be as helpful as possible.
Thanks
Gee