Help! I don't know what to do

Hello everyone!!!!

I've posted here before- I'm about to turn 18... I still have my headache from when I was in CHOA. They were very rude to me- did not have a pleasant experience. They want me up and walking, because if I'm not, then I develop a cough. Well- I was up and walking for the first time of that day. The neurologist immediately said my headache wasn't bad, and discharged me.... I am crying as I type this. Anyway, I am in pain that stays at a 3 or 4 when I'm at home, but when I want to go out and do stuff, it radiates up to a 5 or 6. What should be my next step? I've had nerve blocks, (didn't really help this time) and I don't get Botox until January 10th.... If someone cancels, then I am on a waiting list. I can barely sleep because I wake up with it hurting and it hurts to lay down. I have been diagnosed with a HM before. I go to a headache specialist, not a neurologist. I go to an Atlanta, GA migraine specialist. I'm just at my wits end with this migraine, and am ready for it to go away. I've had MRI's and they have all come back normal. My CAT scans have also come back normal on my sinuses. What should I do next? My family and I are at a lost. I do NOT want to go back to CHOA. My infusionist at the doctors office is out until maybe next week. I'm just losing it. Thanks in advance.

Heather