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Hemiplegic Migraine

Hi everyone,

I am new to the forum. This is the first one that appeared in my search for forums.

My almost 17 year old daughter had what looked like a stroke about 8 days ago. I immediately took her to emerge. I tried to get her to the children's hospital, but, her face started to droop, so I took her to the nearest hospital.

They didn't offer any real explanation as to what was going on so they sent us home. I also want to mention that this occurrence lasted approximately four hours.

Five days later, she had another attack. This time we headed to the children's hospital. They mentioned the possibility that it was a hemiplegic migraine.

They gave her a migraine cocktail. Again, this episode lasted about four hours.

Her symptoms included: loss of coordination, difficulty speaking and tight clasping of her hands.

She will be getting an EEG next week. I am totally freaking out as just watching her go through this is so scary and I can't do anything about it.

They seem to be triggered by sounds or touching certain things.

Has anyone experienced these? I really don't know what I'm asking here. How do you cope? Is there anyone out there that also experiences these?

Thank you for any information you can provide!!!

  1. Thank you so much for sharing some of your journey with us. So sorry to hear of these challenges with your daughter. We have a number resources on the topic of hemiplegic migraine here- please peruse the articles (and comments that follow the articles) as there are many pieces about those who experience it firsthand:

    Is she being evaluated by a migraine specialist? We recommend this type of doctor as they are most capable of addressing the complex neurological condition that is migraine.

    Your daughter is lucky to have you supporting her through this. Be sure you also have the support you need as it can be terrifying to watch a loved one experience that type of pain and other symptoms that accompany migraine. Hemiplegic migraine is particularly disturbing due to its visual symptoms.

    I was in a three week inpatient migraine evaluation clinic and my roommate had Hemiplegic migraine. It was so upsetting to see half of her face droop and become discolored during her attacks that would often come out of nowhere.

    We are here for you. Please stay in touch and let us know how else we can support you. Warmly, Holly ( team).

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