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Migraine and work - feeling so sad.

Hello everyone, I'm new to posting, I could really do with a friendly ear from people who understand.

I've had chronic migraine since 2014, I've lost 2 jobs and a uni course because of it. I finally got to the point I could work again and I found a job I absolutely love. Trouble is - my head has had other ideas. I'm off sick again and now and all I can think about is losing my job.

The migraines have settled with an increased dose of medication but the fatigue is awful. I have zero energy. I can barely get out of my bed. And I'm feeling more and more depressed. I've had my probation period extended and I just know that the "catch up" chat on Monday isn't going to be good. I honestly don't know where to go from here. According to universal credit, I was fit for work and I've tried my absolute best. Everything feels so hopeless.

Sorry for the ramble and thanks for reading.

Sarah

  1. Dear Autumn 283, I had filed for an intermittent FMLA from my job for my migraine attacks, it has saved my job. You should look into this because migraines are clinically classified as a disability. Good luck to you!!

    1. Thanks so much for your reply, I'll have a look in to this 😀 really glad you found a way to save your job.

  2. ,
    Thanks for sharing your migraine journey with us. Working along with having migraine disease can be a challenge. Other community members have had their own perspectives on it. Some push through, some work fewer hours, and some have had to file for disability. We have a space for people to post about this topic here. You might look at what @jamiecai posted to check out this option for intermittent FMLA to see if that is an option for you. ~ Peggy (Migraine.com team)

    https://migraine.com/topic/migraines-and-work/

    1. Thank you for your reply - I'll have a look at the proper board now 😀

  3. Hey, Sarah. Thanks for talking with us about what you're going through. You're definitely not alone here. It would be helpful to know what country you're in, as much of our content applies to the U.S. but we'd be happy to help you out in any way we can.

    Sending you hugs and best wishes! We're here for you. 😀
    Melissa, migraine.com team

    1. Hi again, Sarah! I did some poking around and I feel like this is a pretty comprehensive resource. Of course, it's for asthma, but it can certainly apply to you as well.

      Forgive me if you knew about all of these already! I'm coming at this from the U.S. so my knowledge is limited, but I still wanted to help.

      https://www.asthma.org.uk/advice/severe-asthma/making-life-easier-with-severe-asthma/benefits-severe-asthma/

      Take care,
      Melissa, migraine.com team

    2. Oh bless you, thank you so much for going out of your way to help.

      Disability benefit/help in the UK is so difficult at the moment, this government have made it impossible. I've tried twice and been told I was fit for work even when I was at my worst - I think work are probably going to tell me I'm not fit ... so will probably need to apply again and hope for the best!

      I'll read the resources you posted, will be good to see what other chronic illness experts advise when tackling things.

      Thanks again 😀

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