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Migraine Basics: What's in Your Toolbox?

We want to get to know you! Our Migraine Basics forum series features different questions for our community to learn more about each other's lives and journeys with migraine.

What’s in your migraine toolbox? How do you take back control when migraine gets in the way of everyday life? Share any tools or tips that help you with the community below!

  1. Rescue meds, Advil, bed buddy, Tylenol,tea

    1. yes… my bed buddy is a buckwheat filled neck wrap type pillow I can heat in the microwave and it stays warm and moist draped around my always sore neck and really helps… I found it on Amazon

    2. that sounds amazingly comforting, even without dealing with migraine! Thank you for sharing with us! Warmly (no pun intended!), Tracy (Team Member)

  2. One medication that works

    1. that's wonderful that you've been able to find a medication that works for you. It's key to living well with migraine. And of course, having it close to the bed is helpful to so it's always within reach when you need it.
      Alene (team member)

  3. Lots of meds that don’t work-triptans, CGRP’s, topiramate, blood pressure meds. My only preventative right now is Botox and an implanted neuro stim. My abortives are a cocktail of meds that typically only make me sleepy. I still struggle daily.

    1. thanks for the reply. This is my second time using Botox and I do find it helpful. My baseline is down to a2 from a 4 daily. I am never without pain. My neurologist took me off Botox when I got my neurostim. The stim worked really well at first but I’ve had it for 6 years and it’s become less effective. I have tried to be an advocate for chronic migraine on Facebook because the stigma is still so great, especially in the workplace. Asking for accommodations is often not accept with real results that help us stay employed, especially when you haven't met eligibility for FMLA.

    2. - I'm sorry to hear that you're going through this. It sounds incredibly tough to deal with the failure of these medications and treatments while still struggling with daily migraines. It sounds truly exhausting to constantly search for something that works. Just know that you're not alone in this. Have you contacted or informed your treating physician that the neurostim is becoming less and less effective in treating your migraines? Maybe with this, he can adjust or change your treatment plan to help. Thoughtfully, Rebecca (team member)

  4. ice hats, migraine tea, nurtec

    1. that's great to know, thanks again for sharing!
      Best
      Alene (team member)

    2. that makes sense! I know a few people for whom the caffeine 'help' has a fine line - too much and it creates other problems for them. I second the ice hat concept too! Wishing you a gentle day, Tracy (Team Member)

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