Migraine Basics: What's in Your Toolbox?
We want to get to know you! Our Migraine Basics forum series features different questions for our community to learn more about each other's lives and journeys with migraine.
What’s in your migraine toolbox? How do you take back control when migraine gets in the way of everyday life? Share any tools or tips that help you with the community below!
Rescue meds, Advil, bed buddy, Tylenol,tea
that sounds like a winning combination! I haven't heard of a bed buddy before, is that a special pillow?
Alene (team member)yes… my bed buddy is a buckwheat filled neck wrap type pillow I can heat in the microwave and it stays warm and moist draped around my always sore neck and really helps… I found it on Amazon
One medication that works
that's wonderful that you've been able to find a medication that works for you. It's key to living well with migraine. And of course, having it close to the bed is helpful to so it's always within reach when you need it.
Alene (team member)
Lots of meds that don’t work-triptans, CGRP’s, topiramate, blood pressure meds. My only preventative right now is Botox and an implanted neuro stim. My abortives are a cocktail of meds that typically only make me sleepy. I still struggle daily.
it can be quite challenging to find a medication that works well, especially if you've been living with migraine for a while now. It certainly sounds like you've been exploring many options and recommendations. I'm glad that you're part of this conversation here to help raise the awareness of the struggle to find the "right" treatment plan for each person. How long have you been doing botox? Have you found it to help reduce the frequency or intensity of attacks?
Alene (team member)thanks for the reply. This is my second time using Botox and I do find it helpful. My baseline is down to a2 from a 4 daily. I am never without pain. My neurologist took me off Botox when I got my neurostim. The stim worked really well at first but I’ve had it for 6 years and it’s become less effective. I have tried to be an advocate for chronic migraine on Facebook because the stigma is still so great, especially in the workplace. Asking for accommodations is often not accept with real results that help us stay employed, especially when you haven't met eligibility for FMLA.
ice hats, migraine tea, nurtec
I love my ice hat!! It doesn't take an attack away, but it certainly helps me to feel more comfortable during one. I haven't tried the migraine tea. Is that one that has a little caffeine in it?
Alene (team member)no caffeine, which is why I use it when I've used too much caffeine.
