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Migraine, suffer and getting older

This might not be the most pleasant thing to read, but I thought it was important. As far as information, I’ve had severe migraines my whole life, that is my adult life, since I was about 25. As I got older, I started getting some other afflictions, and I found out through a MRI of my brain that there was a lot of white matter on it and that was attributed now to migraine activity. Then as time went on I had problems with my heart too. It was partially because of COVID relations but also because of migraines and how they affect your blood flow, etc. So without making this too fearful because everybody of course is different that as you get older, there might be different avenues of where your migraine takes you. I know that when I was in my worst stage with the heart, they gave me medications that actually almost stopped my migraines because of the change of blood flow. Now that I’m on less of that medication I’m getting migraines back. It’s a very convoluted disease and it’s been most contrary in my life.

  1. Thank you so much for taking the time to share your lived experience with migraines, . It's candid posts like this that help others feel less alone with the difficulties migraine can bring to our life.

    As I read your post, I also appreciated how down-to-earth it was. You did a great job explaining what migraine is like for you while also acknowledging that it's a condition that affects everyone differently.

    Hope to continue seeing you around the community. I can imagine you have a lot of valuable information to share and support to give.

    Warm wishes, - Cody (Team Member)

    1. - as Cody states, you've done a great job at describing how migraine causes upheaval in one's life.

      I can relate. The uncertainty about how migraines might evolve as you get older is truly worrisome. As everyone's health journey is unique, it's important to approach this with an open mind. For me, it's taken a turn toward managing my orthopedic neck issues sending me on a journey through PT and pain relief/control. This has affected the severity of my migraines. And I am trying to get it under control. I wait, I learn, I watch - hoping for relief.

      I'm curious to hear about other avenues migraine has taken people. I'll circle back around to read the responses. Thanks for the post - most interesting topic.

      Thoughtfully, Rebecca (team member)

      1. I’m truly flattered that you think that I can be of a certain amount of help. I’m not new to the forum It’s just that I’m much more conscious of the stealing of data and spamming, etc. so now I’m registered with a browser that gives me its own logins I’ve been on this forum for quite some time

    2. I’m truly flattered that you think that I can be of a certain amount of help. I’m not new to the forum It’s just that I’m much more conscious of the stealing of data and spamming, etc. so now I’m registered with a browser that gives me its own logins I’ve been on this forum for quite some time

      1. everyone's voice matters - including yours! So, we're grateful for it. And I'm glad to hear that you're also savvy with keeping your information safe too. That's always a good thing!
        Best
        Alene (team member)

    3. I've also had migraine my whole life, officially since 19. Now I'm 55 and I, too, have had major changes over the years. I've been chronic with migraines since my mid-20s. I also have "benign white spots" on my brain which I absolutely don't believe are benign since white spots = dead spots.

      I don't get the pounding head pain so much any longer, but I have facial nerve damage, vertigo, and blurry vision now. My blood pressure has also gone up, not just from age but from chronic pain. There's list of things, actually, but those are the big ones right now.

      I agree migraine is different for everyone as well as the fact it changes over time, and I love the fact that you're starting to hear migraine called a neurological disorder rather than a headache.


      1. UGH! Living with long term migraine disease is exhausting and frustrating. We love having our community share their experiences with us - they're all so different.
        It's not uncommon for our migraine symptoms and/or patterns to change over time, mine sure have. I also encourage people when this happens to let their doctor know so they can make sure everything checks out OK.
        My BP inched up during attacks, then transformed into HBP. It's under good control with medication right now. I don't see as many spikes in BP from migraine attacks since I've been properly medicated.
        Thanks for sharing and I'm sending you pain free wishes. Will you let me know how you are doing? Nancy Harris Bonk, Patient Leader/Moderator (team member)

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