My twin sister& I fight daily wt this very physically& emotional pain disease. .we have a VERY rare form of this tumors disease that we were born wt& I am fed up wt ER staff that treats me as a drug seeker! I fight daily to stay active& healthy. .I work& stay fit& have outlived my death date by 13 yrs..but when my meds don't help& I'm in puking pain I avoid the hospital because of the way I'm treated! Even though I've had brain spine surgery& over 30 surgeries removing painful tumors. .they still say..I'm a complex case& push me out the er & say go home& take your meds..DHHH. .y didn't I think og that u @$$! Y am I here if my meds are doing awesome! While in pain I can barely breathe or speak they treat me inhuman! I have several stories that could be taken to court but I just want to have respect if I go to the er..once a year or even once in 2 yrs I have to go to er& that makes me an addict! I can tell u stories that are soo inhuman& cruel..if you know how I feel I am here to talk..ty..God bless you all!