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New to this all, and could use some help.

Over the last 3-4 years I have been having what I assume are ocular migraines, or migraine with aura. I have not seen a doctor yet, I know that I probably need to do that. Last night I had one, and then a following this afternoon. I’m mainly wondering if anyone has similar symptoms, and if you have any tips to help. My (assumed) migraines usually follow a pattern: 1.) Blurriness toward the center of my vision field, making it difficult or impossible to read. 2.) A line of prisms or kaleidescopish vision that starts small in the center, gradually expanding to the outer vision, then finally dissipating after 30 minutes or so. 3.) Sometimes a small headache, nausea, and even diarrhea... basically feels like I have the flu or a hangover.
I know that no one can diagnose here, but I'm basically wondering if this is seemingly concurrent with other symptoms of migraine, and more importantly any tips or tricks to help out! I am a pilot and spend a lot of time staring at screens, so I've been wondering about some good blue light blocking glasses?
Thank you to everyone for any assistance!
Note: My mom had the same type of symptoms around my age but said it went away after a few years. I know there is a large roll of genetics in migraine, so that seems to jive.

  1. Hi @aphineday,

    Welcome!! Thank you for reaching out and sharing your story with us.

    As you mentioned, we can't diagnose you, however having said that some of the things you've described could be migraine related. And yes, migraine is thought to be a genetic, neurobiological disease. Migraine with aura (often referred to as ocular migraine) is experience by 25-30% of people living with migraine disease. It's important to get an accurate diagnosis which will allow us to receive the correct treatment and learn all we can about our particular type of headache disease. I would encourage you to reach out to your doctor as soon as possible.

    The thing is episodic migraine (14 or fewer attacks a month) can transform into chronic migraine (15 or more attacks a month) fairly quickly if not treated appropriately, and no one wants to be chronic!!

    Tips and tricks for migraine management include; staying hydrated, keeping a regular sleep schedule, not skipping meals (eating on a regular schedule) and avoiding the triggers we can. Getting regular exercise and reducing stress are also beneficial.

    One of the best ways to do this is to keep a detailed migraine diary for a few months. Let me share our information on this here;

    I'm sure others will be along to share their experiences with you. Will you keep me posted on how you are doing? Nancy Harris Bonk, Patient Advocate/Moderator

    1. Hi, Nancy. Thank you so much for the kind reply. I appreciate the tips and tricks, and will definitely see a doctor when I get home from work next week. I will totally look into the migraine diary, that sounds like a great way to help get a handle on things. I also ordered those blue light blocking glasses in an attempt to hope that helps me a bit.
      After my second attack in 12 hours yesterday, I felt absolutely awful for the rest of the day. I was improved a good deal today, but still had some nausea etc.
      I will absolutely keep you all updated, and again appreciate all of the help and kindness.



    2. Hi @aphineday,

      John - I'm sorry to hear about your recent attack - so frustrating! It's not uncommon to feel awful after the headache phase of an attack, called postdrome, which can last for up to 48 hours. This phase may leave us feeling exhausted, moody, "hung over" have trouble finding words and a number of other symptoms. This too shall pass is a common phrase in my mind!

      I forgot to mention there are glasses specifically designed for people with migraine disease who are light sensitive. I have an outdoor pair from TheraSpecs I love. They also may indoor glasses people are very pleased with. I'd love to know how the blue blocking glasses work for you.

      Have a great weekend and I look forward to your next update!
      Nancy Harris Bonk, Patient Advocate/Moderator

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