Hello, I've never posted before, but am feeling very alone. I tried posting on a migraine subreddit but got nothing helpful. Apparently of the thousand plus viewers of my post, nobody had had my experience! I'm trying to a.) not feel so alone, and b.) determine if it is worth mentioning my symptoms to a neurologist if I don't really want to be on drugs.
I've had migraines for 18 years, typically with pretty debilitating auras. I never had AIWS as a child that I recall. My migraines got progressively worse through my 20s, and that's when the visual hallucinations began. I get a couple major episodes per year, and sometimes just minor ones that aren't super debilitating. The reason I think they may not qualify as AIW is that I dont have size distortions. I've only seen one other person in a very old post mention they see things moving and swirling, as I've experienced.
-the sidewalk and street appear to bulge up to meet my feet as I walk
-see only certain colors as excessively bright
-see shadowy darting movements on the peripherals of my vision (this has happened to varying degrees on multiple occasions)
-not see a whole person standing in front of me talking to me - i was not 'blind' from the migraine - my eyes were working fine, I just didnt perceive him at all and had to be told later i just walked past this person
-disappearing words on a page. While reading I can see the paper clearly, just not certain words on the page. Its not blind spots - its missing words, with smooth page underneath, that I logically know are not actually missing.
-disappearing words from road signs. This one is scary. A STOP sign was just a red octagon
-picasso experience - I saw someone's face as cut up and disjointed. Everything else was normal - their body, the rest of the room. It only lasted a few min.
-aisles at the grocery story seeming to tilt or bend inward
-the ceiling and walls in one corner of a room pulsing and swirling
-a sense of my whole body being lifted up to the ceiling while still seated.
-a feeling my spirit/awareness was floating on the ceiling while my body was left down walking around like normal on the floor - some sort of extreme dissociation. (This happened after taking CBD oil and I think it triggered some sort of strange reaction I was apparently already prone to)
Does this sound like Alice in Wonderland, or something else? Is it worth telling a neurologist? I live in a small community where docs typically dont think outside the box.