Pseudotumor cerebri
I got this diagnosis after a recent MRI. I have had migraines for 24 years and chronic migraines for about 6 years now. What does this diagnosis mean to me?
Hi Lynettet,
Thank you for your question. I'm sorry to hear about an additional diagnosis - I understand it can be tricky living with multiple conditions. Let me see what I can do to help.
Pseudotumor cerebri is now called IH, or intracranial hypertension, which I have as well. I was diagnosed by a lumbar puncture, which is the way this condition is usually diagnosed. Let me share our information with you on this; https://migraine.com/blog/migraine-comorbidities-idiopathic-intracranial-hypertension/.
I'm able to manage my IH with medication and regular eye exams, others have shunts placed. When first diagnosed I read as much as I could about this condition, which helped me understand symptoms and various treatments. The Intracranial Hypertension Foundation is solely dedicated to IH and you can find that here; https://migraine.com/blog/migraine-comorbidities-idiopathic-intracranial-hypertension/.
Please let me know how you are doing,
Nancy
