Nancy Harris Bonk Moderator
Hi
Thank you for your question. I don't have any personal experience with this procedure. In general, I'm very leery of any procedure that involves invasive surgery. I've heard way too may horror stories from this.
Here's my thinking - migraine is a complex neurological disease falling on a spectrum from mild to severely debilitating. An invasive procedure won't address the underlying disease, and may not be worth all the potential problems that may occur. This is just my opinion and I'm sure others will be along shortly to share their experiences with you.
I did want to add there are over 100 medications, supplements, devices, complementary therapies and lifestyle modifications that can be used to manage migraine disease and most of us are on a combination of these. I sure am!
Another thought is have you had a chance to seek out help from a doctor who is a true expert in treating migraine and headache disease? General neurologists may be fine doctors but have a hard time being experts in one area because they treat so many conditions such as stroke, epilepsy, multiple sclerosis, Parkinson's and more. Many general neurologists who treat people with migraine and headache disease claim to be experts but that may not be 100% accurate. A true migraine/headache disease expert is board certified in headache medicine (not all neurologists have this additional certification) and treats migraine and headache all day, every day. These expert doctors can make a huge impact in our care - mine sure has. Here is more information on why these doctors are beneficial and where to find them;
1) https://migraine.com/blog/really-find-headache-specialist/
2) https://migraine.com/living-migraine/change-thoughts-new-care/
3) https://headaches.org/resources/healthcare-provider-finder/
4) https://migraine.com/living-migraine/how-to-find-a-neurologist-or-headache-specialist
5) https://migraine.com/living-migraine/hiring-right-doctor
Please let me know what you think and I look forward to hearing more from you, Nancy Harris Bonk, Patient Leader/Moderator (Team member)
Tonya Henry Moderator & Contributor
https://migraine.com/stories/quality-of-life-improved
This site also tells you information related to it. It was developed in Dallas, TX. I hope you find out more information and if it may be right for you. https://usmigraine.com/.
When I am looking into any treatment, I look at how many have used it/gotten it done, the certifications of the doctor if it is a procedure, and the reviews of who would do it, in the least.
I know you are looking into this procedure, but have you tried other minimally invasive things to treat your migraines?
Thank you for asking this question and being part of the community. (Tonya, team member).
lisawisconsin Member
Thank you so much to both of you! I've been treated by a neurologist but yes - have felt like they have to deal with bigger issue patients. My healthcare provider used to have migraine PAs trained in such, but one got so frustated that she was practically like well I give up, just get a massage. I've tried others, either they give you a Rx (they gave me the same one they give my husband for his back!), I will say...the best person was the nurse who did my botox injections. She was practical, but sympathetic and realistic. I can't afford the shots now. However, this forum, it's support, has made a difference already. I know this is something I have to manage, not cure. There is no silver bullet. I can't thank you enough and I hope I can repay the kindness.
lisawisconsin Member
And I will say...my GP...is the best. But she is honest and said migraines aren't her specialty, but does keep providing my prescription for low-dose clonazopam for anxiety due to migraines, etc.
Holly Harding Moderator & Contributor
May I ask you about the Botox? Just wanted to make sure you knew that they (https://www.botoxsavingsprogram.com/) have a savings program (if you have private health insurance) that helps to make up the difference between what your health insurance covers and what you pay out of pocket. Just wanted to mention it to you in case that treatment was effective for you.
Migraine specialists are generally more trained to understand that there is no cure for the condition. That said, there can be stinky migraine docs just like there can be bad GPs. I've had wonderful and terrible versions of both. In your case, because you love your GP but this is admittedly not her speciality, it might behoove you to simply have an evaluation with a migraine specialist to inquire about the newest treatment strategies available and then let your GP partner with the specialist to implement and manage the plan.
We're so glad you found us too, by the way! Warmly - Holly (team member)