I was told by my new neurologist that the butalbital is causing MOH..which I understand..he said to stop it...I asked how? He said just do it! I'm too afraid...I have begun tapering from 4 a day to 3 a day but everything I read says do this under medical supervision...I was on aimovig from July 2018-February 2019 they stopped because I started to feel super sick...we were in the process of moving and no headache specialist (ones that previously were my docs....Abraham Nagy was one) would not see me! My new neurologist (I love in Atlanta now) put me back on aimovig last week on October 2 in his office...I injected myself in his office. He said if you need help go to the diamond headache clinic in Chicago (where I have been an inpatient in 2004) or Jefferson in Philadelphia?? I can't get in I'm sure without a long wait...I'm at a loss..I used to be a member of the Migraine.com community but don't read it so much anymore..I'm reaching out now of great great and desperation. I need to get rid of butalbita...prescribed incorrectly by yet another "good" neurologist Dr. Joshua Turknett (my migraine miracle author and part of the migraine world summit) he also refused to take me back as his patient, and then next is getting rid of Klonopin (low dose.05mg twice a day). Neurologist wants me off butalbital first...help me, please...I dont know where to turn. I've never been so disillusioned by so many neurologists in my 43 years of suffering....nobody cares and I honestly don't know what to do... 🙁
Long-time reader with respect,
Thank you kindly in advance for any direction you might have for me.