During a recent trip I took after becoming fully vaccinated (Pfizer) I suffered an extremely severe migraine that began like my regular ones do but with the added feature of numbness all along the left side of my face, tongue and hands. My ocular symptoms are also on the left side (eye).
The migraine basically has not stopped since -- it’s now 22 days later. I've been out of work for two weeks and on short term disability which my employer thankfully offers. The situation is untenable.
As is generally the case for me, this is mostly an aura, not head pain really, that does not lift, though I've had two severe ocular/numbness attacks within, including one earlier today. The experience is driving me crazy.
The only thing that's helped lift the aura has been klonopin, though ubrelvy does seem useful when I'm getting an acute attack within this larger aura period.
Given that klonopin has proven helpful in the near term (I can function when I take it, though I know benzos are bad long term), and my long history of anxiety, my doctors (neuro and psych) are in favor of me starting Effexor. I understand the logic.
Now, I really don't want to start taking an anti-depressant, but the essentially permanent aura I am experiencing is pressing my hand. Last week, prior to being prescribed klonopin, at its worse, I developed vestibular symptoms as well, and the combined symptoms — nausea, pressure in my head, disorientation, the surreal hard to describe aura in my visual field (not as specific as when you are having an ocular attack, but nothing seems right, you can't read clearly etc. — really made me think my time was up. I simply could not stand what I was experiencing. At least now with klonopin the panic element is gone, but it makes it no less jarring to cooly observe your body completely shut down when I get an attack, or have a baseline of complete disorientation. My neuro has diagnosed me with an atypical migraine. I had two MRIs come up clean, and this isn’t something more sinister like MS. I did get my eyes checked and now have a weak prescription. Otherwise I’ve been wearing sunglasses all day as light initially made me want to vomit. I’m totally lost at the moment. I was stringing together a few good days with just the klonopin, which I was hoping would bring my brain temp (so to speak) down a few notches and let me come out of this intact. I’ve tried adding CBD in flower form, which I smoked in recent days and this morning, which made me feel more relaxed and generally more positive. But shortly after this morning I had my worse ocular/numbness attack yet. Though I headed that off quickly with my morning dose of klonopin, an ubrelvy and two Advil, it was hugely discouraging. I don’t really have a specific question for you folks, but if anyone has thoughts or ideas, or has gone through anything similar, please let me know. As awful as I know the pain of a migraine can be, I would trade it right now for a semblance of normality between the pain. I was hoping to get back to work tomorrow but the set back today is so, so discouraging. I Imagine I will begin the Effexor this weekend in lieu of anything else. My neuro has not really encouraged me to try other medicines, which I get given the nature of what I’m experiencing (it never ends), as well as my anxiety problems. My life right now is split into two portions — prior to early April, 2021 and after. I currently feel like I’ll never get it back… but I will keep trying.
I've identified a few possible food triggers but honestly they are foods I've eaten a bunch in the past and they don't really explain this sufficiently. The only other thing that's changed is the vaccine, though I doubt it would cause this.
Thanks for reading.