My Personal Expectations vs Reality with Chronic Migraine
Last updated: November 2023
As I have mentioned before, I have chronic migraine. I wish that they were just every now and then, unfortunately, they are quite frequent. I do take medications to try to prevent them, but still need break-through medicine.
I have things that go on in my head about migraine that I wish were true. The fact is that migraine causes my life and others, to be turned upside-down at times. Below are my thoughts.
Expectation vs Reality #1
Expectation: I will get out of bed today. This thought is what runs through my head nightly, for the next day. I feel this is kind of like an affirmation.
Reality: I cannot get out of bed every day. I may wake up and have so much fatigue, pain, nausea, or lightheadedness from dealing with a migraine or post-migraine, that I just can’t make it.
I feel like I am always telling people that I am “sick” or, “I’m sorry.” It is not like I plan this. It just happens. All I can do is lay there, rest, and medicate when necessary. With chronic illness, there may be many days like this, but I do my best. I get up when I can. But, if I need to be in bed, I stay in bed. My body lets me know when it is going to be a down day.
Expectation vs Reality #2
Expectation: I will be on my computer being productive every day, Monday-Friday. This was something that I told myself a few years ago. Now, it is a big, “I wish,” (insert smile).
Reality: I get on my computer maybe three days of the week, for about an hour or two. For one, just seeing the words go across the screen, the eye strain, or mild migraine symptoms already, prevents me from doing more.
It is difficult just turning the computer on knowing that there is much that I want to do each day, but just can’t. If I have been doing something else that day, I may not be able to even get on the computer at all. I do what I can. It is attempted on many occasions, but stopped before it’s truly started.
Expectation vs Reality #3
Expectation: I will take my medications on time. I will not miss any appointments. Nothing will stop me.
Reality: I do sometimes miss my monthly migraine shot, as scheduled. I add it to my calendar because I have so much “brain fog” and will forget. I do not always see the notification to take it that day, or, feel too sick to take. I will take it on the next day that I feel up to it though.
I have to call in, and cancel appointments, when the symptoms are too much for me to make it. This is canceling on the same day. When I explain what is going on, they do not charge me a same-day cancelation. I am not super woman. Lol. I know we all seem to think that we can do whatever we want, when we want. That is a big nope. We can try and sometimes, we success. At other times, we are not as fortunate. That is ok though.
Do what you can, when you can. Hopefully those around you will understand about your illness(es). Thank the friends and family that do get it. Possibly try to educate everyone else. Not everyone will understand, but in time, maybe.
In the past year, has insurance made it difficult to get your migraine treatment?