40 and still living with Migraine

I started this roller coaster of life when I was in my 20’s. At the time I worked at a healthcare group and my regular doctor was on staff. I felt as though I was a weekly, if not at times a daily patient. At the time Imitrex was the it drug of choice for doctors to use. However I found that it only made matters worse. Not only did my migraine not go away, it got worse and I also felt as though I was having a heart attack. This is when I became a drug guinea pig. I was prescribed every type of drug they could think of, and nothing seemed to work. Then along came Topamax; which worked until I found out I was pregnant. I had to stop all medications and hope for the best. My migraines seemed to ease off, but the pregnancy presented it’s own problems and I was quite sick most of the time. I lost my job in my eighth month and ended up not working for the next 7 months.

When I returned to work, at a new job, my migraines were pretty much gone. I spent the next 2 years thinking I had beat them. Boy was I wrong! They came back, but were workable. I pushed through the pain and all my lovely side effects; light, sound and smell sensitivity, nausea and numbness. Doctors again could find no drug combination that would work. Even the Topamax didn’t work.

Along comes August 2011 – It was shortly after my work day started, and I could feel the onset of another migraine. I took the meds I had to hopefully keep it at bay enough so that I could make it through the day. About 45 minutes later I experienced the scariest thing I had ever had – my whole right side went numb and I could barely talk. 911 was called and I was rushed to the hospital with what was being thought off as a stroke. I was terrified. An MRI was done and came back clear. No stroke! But I was told that I was experiencing a massive migraine. Up until this point I thought I had experienced the worst pain possible, and never thought it could get worse. That day showed I had been wrong.

I have been on medical leave ever since, and have had many attacks just like the one that day. I now get migraines more often than not. Doctors keep trying all they can, including Botox, but I still get no relief. I am a shell of what I once was. Even on my good days, which are few and far between, I live in fear of my next migraine. I have a 10 year old daughter who has had to suffer as well. She has had to miss out on school events and fun trips because I had a migraine.

Friends and family have tried to understand but how can they understand something I don’t! I get tips all the time of them on things they read or saw on TV. As though I just sit not trying everything I can already.

My hope is that someday I can get to where I only get maybe one or two a month. It used to be that they were gone, but at this point any relief would help!

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

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