Hanging on to HOPE!

As I lay here typing I have a migraine. I went to church on this beautiful Sunday, had to come straight home afterward because I was sick to my stomach from having a migraine all morning. I have had migraines since I was a teenager. It all started when I was diagnosed with epilepsy, a seizure disorder. In 2002 I underwent brain surgery to remove scar tissue from my brain, all went well and I have been seizure free since the surgery!

Then there was a turn of events, I stared to have migraines about once or twice a month. I am sorry to say now I have been diagnosed with chronic daily migraines and I'm at the end of my rope, but being the strong person that adversity has thrown me, I refuse to give up Hope that there has to be something out there that I haven't tried that will help me.

In Sept of 2010 I went to UVA in Charlottesville Va where I was admitted to the hospital for DHE treatments. The treatment only last about a week, then I was back to square one. I have tried so many migraines medications. Here is just a few, but I've tried a lot more. Imitrex, relpax, zomig, maxalt, midrin, fioricet, zanaflex, mirgranal nasal spray, topamax, elavil, lamictal, neurotin, loratab, toradol....need I say more? I have began to check into maybe having nerve decompression surgery in Houston Tx but I don't think my insurance will cover it and it cost $15,000! One thing I haven't t tried is botox for my migraines. I am trying to save enough money up to pay for the injections ($600.00), another procedure my insurance does not cover!

Through it all I have became a stronger person. I have even more compassion for others and want to help them any way that I can. I want to be a HOPE mentor for other migraine sufferers out there. We must never give up hope and press forward to the day when researchers can say I have a cure for this neurological disease. There is no cure for epilepsy, but I have overcome that. There is no cure for migraines, but I pray that I will over come that as well.

My family hurts for me, because it does not just affect me, but everything that we do. I have missed out on so many family events I can't even start to count them. My family is very active and love to go bike riding, another thing that is very difficult for me, because when I become to hot, or over do it, then bam a migraine strikes. I am light sensitive, can't handle loud noises, experience nausea with my migraines, and have just started getting dizzy when I have one. I could go on and on with my story, but I will stop here my migraine friends. My prayer for you all is that you will find the help that you need and one day migraines will be a word of the past! Thank you for taking the time to read my story.



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