Long and winding road

Hey there. I was checking out migraine resources as I am a reluctant member of the club and thought it would do me some good to share my story. I’m a 54 year old woman who has a full time job. Long history of monthly migraines which diminished as I matured. Went two decades without any migraine activity and then two years ago, intractable migraine, many meds and three neurologists over a debilitating 4 months. Finally got to a headache specialist and received botox injections every 3 months which worked wonders through 5 treatments and my intensity of pain was reduced on most days and experienced days pain free.I was able to return to work, driving and even working out again. the migraine events I did experience were only about 48 hours with 24 hours following of what I call a migraine hangover. I was feeling like I had my life back. Go get a boxtox shot every 3 months, stay hydrated, get sleep, eat right, don’t over commit to social activities.

Then the evening of January 22nd happened. I came home from the gym with a chip on my shoulders, a personality change and felt like I was looking for a fight. I put myself to bed and was having a migraine episode. I followed my usually protocol to pass the time until the symptoms subsided, dark room, sunglasses ear plus or headphones, ice pack and heating pad on neck and shoulders. When day #3 came and I still felt awful I thought maybe the botox is wearing off? I waited a few more days, god forbid I overreact and contacted my doctor. Insurance wouldn’t approve an earlier than 3 month botox treatment. Dr. saw me in her office and ordered new MRI and MRA. Normal. Steroids ordered, taken and had no effect. botox appointment scheduled, completed and had no effect. Anti-inflammatory ordered, taken and no effect.Why wasn’t the treatment that had essential worked miracles, giving me my life back working? Dastardly migraine!

Here I am- 30 days later, sharing my story with an on-line community with folks who get it. Dr. ordered an infusion. Waiting for an infusion appointment. Still symptomatic and can’t work in my present condition.

I was able to read the conversations about infusions which helped immensely last night. Trying to stay positive as negativity surely worsens my condition. I found a grocery delivery system which was truly life-saving.

The stories we share would make most folks “shake their damn heads” , however as a migrainer, you and I know that is not a strategy we can advocate.

Peace and Blessings

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

View Comments (2)
  • 1 year ago

    I’m so sorry what what is happening to you. Keep us posted on how things progress. It’s sound like you have a really good doctor.

  • mbabi1970
    1 year ago

    Hi. I am so sorry for your pain and all that you are going through. I am 48 and a chronic migraine sufferer for 10 years. I have tried literally every preventative medication and treatment out there. Botox never worked for me. I do know from talking to so many people over the course of my journey that as we age, our bodies change and therefore, treatments that once worked, may no longer be helpful. On the flip side, things that didn’t work before, may now work. We just need to keep searching for options, trying different things and the hardest of all, NOT LOSING HOPE. I know this is an extremely hard time for you. I myself, had to end my career due to this disability and that in itself is a hard pill to swallow. But please know there may be something in the future that helps. There are new devices (cefaly) and new drugs in the works and you never know when one of those things may be the right thing for you. I know I am not offering you a specific treatment to try, but I just don’t want you to lose hope. Multiple day or week-long attacks are very difficult to get through. Create and find your support system with your doctor, family, friends, this online community to get you through. There is always a chance tomorrow can be brighter. Stay well. Michele

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