Could It Be Ocular?

My migraines started almost 8 years ago and I thought I was going to die. It started as a normal day at work then quite literally out of nowhere I got cold but was sweating and then I puked. Shortly after I started losing vision in both my eyes and had to go out to my car before I went completely blind and sat there crying for hours until I could see again, then when I could see I drove myself to the emergency room.

Tests and medication

They did blood tests and took a scan of my brain and saw nothing. I made appointments with specialists and saw a lot of doctors and they all attributed it to stress and should relax. Tried anti-anxiety medicines and they helped my stress and I thought it fixed the issue.

Another attack

Months later it happened again when I was at the grocery store with my toddler. Luckily I had my grandma with me to help with my daughter. But it started out as colorful lines in both eyes then slowly the tunnel vision came and within 10 minutes I was blind. Then comes the migraine.

My blindness routine

Fast forward 8 years and I still get them but they are so random that doctors won't treat them. I have a small blind spot in my left eye but was told the blindness could become permanent. Whenever I start to go blind now I have a routine in place that my 11-year-old and 3 year old know really well.

Parenting woes

I have 10 minutes before the blindness to get the girls settled, take a lot of Tylenol, then keep my eyes closed to let them rest. I still have things that need to be done so I have learned to do a lot of things while blind and my girls are great helpers. Before anyone asks I don't have anyone to help, mom and dad are gone, my oldest and only friend moved away a few years ago for work and I have no one else.

Seeking answers

I was told ocular migraines are supposed to only last a short time but mine can last for hours and I had one time that lasted to the next day. I don't know what else to add but after so many years of no answers and migraines that come on their own schedule, I wanted to know if anyone else has ever dealt with something like this.

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