Could It Be Ocular?

My migraines started almost 8 years ago and I thought I was going to die. It started as a normal day at work then quite literally out of nowhere I got cold but was sweating and then I puked. Shortly after I started losing vision in both my eyes and had to go out to my car before I went completely blind and sat there crying for hours until I could see again, then when I could see I drove myself to the emergency room.

Tests and medication

They did blood tests and took a scan of my brain and saw nothing. I made appointments with specialists and saw a lot of doctors and they all attributed it to stress and should relax. Tried anti-anxiety medicines and they helped my stress and I thought it fixed the issue.

Another attack

Months later it happened again when I was at the grocery store with my toddler. Luckily I had my grandma with me to help with my daughter. But it started out as colorful lines in both eyes then slowly the tunnel vision came and within 10 minutes I was blind. Then comes the migraine.

My blindness routine

Fast forward 8 years and I still get them but they are so random that doctors won't treat them. I have a small blind spot in my left eye but was told the blindness could become permanent. Whenever I start to go blind now I have a routine in place that my 11-year-old and 3 year old know really well.

Parenting woes

I have 10 minutes before the blindness to get the girls settled, take a lot of Tylenol, then keep my eyes closed to let them rest. I still have things that need to be done so I have learned to do a lot of things while blind and my girls are great helpers. Before anyone asks I don't have anyone to help, mom and dad are gone, my oldest and only friend moved away a few years ago for work and I have no one else.

Seeking answers

I was told ocular migraines are supposed to only last a short time but mine can last for hours and I had one time that lasted to the next day. I don't know what else to add but after so many years of no answers and migraines that come on their own schedule, I wanted to know if anyone else has ever dealt with something like this.

By providing your email address, you are agreeing to our privacy policy. We never sell or share your email address.

More on this topic

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

or create an account to comment.
poll graphic

Community Poll

Do you prefer reading stories from others with migraine or informational content on our site?