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Living with Migraine

Juggling life with migraines

  • By jesslou1604

    I’ve had migraines since I was about 8, always thought it was linked to my poor eyesight as it was only ever flashy lights in front of my eyes and horrid pain – but it would go after a few hours.

    But now my migraines have got a lot worse. The last week has been the week from hell.

    Monday morning I was woken by severe head pain and I lost the feeling in my right arm – my parents rang the emergency services thinking I was having a stroke. After some blood tests and some pain killers my doctor told me it was a sensory migraine – or a migraine with aura – and I was sent home with pain killers and instructed to rest.

    The issue is, it’s nearly a week and the pain is still unbearable even with pain killers. Not only that but I’ve been struggling to balance myself, I’ve been sick and I’ve been hallucinating – as my first migraine with aura this is scaring the life out of me.

    I’m currently in the final year of my degree as well as holding down a part-time job in the industry I’m training for. It’s a very sociable industry and not only am I worried about taking the time off to deal with the pain, but what happens if I start hallucinating during a meeting with a client? Or what happens if I lose the feeling in my arms when I’m driving?

    I’m new to dealing with this and I’m not coping very well, I never knew this “aura” existed and now I’m hearing horror stories of people losing their memory and not knowing who they are and people going blind for days on end.

    I’m worried that since my migraines have got worse from my younger days that they’re going to continue to get worse.

    How do people cope with this? How are people living a life with the risks of “aura” happening? Just hoping to find some advice from someone other than a doctor rushing me out of their office because they’re running behind their schedule.

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  • By Nancy Harris Bonk Moderator

    Hi jesslou1604,

    I’m so sorry to hear you are having a difficult time right now. Migraine is exhausting, frustrating and emotionally draining. This combination can make life challenging. In my opinion, I encourage people who are having a difficult time coping with any new diagnosis, to talk with a trained professional. Learning skills to help cope with chronic illness can go a long way in helping us manage migraine.

    Migraine with aura symptoms can be vast and varied and include numbness and tingling in our extremities, visual hallucinations and other, some of which can be pretty scary. Let me share with you information on migraine with aura; https://migraine.com/migraine-types/migraine-typical-aura/. Our migraine patterns can change as we age, and it’s important to discuss these changes with our doctor.

    It’s very important to have a proper diagnosis as this will help us get the correct treatment and we can then learn about our disorder. These articles address diagnosis and education; https://migraine.com/blog/migraine-management-essential-diagnosis-and-doctors/ and https://migraine.com/blog/migraine-management-essential-education/.

    I hope this helps,
    Nancy

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