Hello new friends. I was just diagnosed today with hemiplegic migraine. What the what? I was hospitalized last week with what they thought was a stroke and admitted but all scans and MRI’s were clear. So I was requested to give back my cozy bed and sent out on a mission to find out what the heck was going on. I had suffered a few classic migraines throughout my life but had absolutely NO idea all these other weird symptoms I’ve been experiencing the last year (or two) were actually migraine related!!! My dentist must have thought I was crazy because my teeth always hurt. My vision was randomly blurry. I could smell things other people could not smell, my nose constantly dripped (not enough to blow but just enough to be annoying). In addition to the constant dull headache that I associated with lack of food, or the change in weather, or stress.
The life changing symptom. One day my knee goes numb for a few hours … ok, random. The next day the same thing, my knee is numb, stays that way for a couple hours and does this thru the weekend. Then Monday comes, sitting at work still have the numb knee but all of a sudden it starts to spread up and down my leg, up my full body into my head. Just the left side. Panic sets in. They call EMS, rushed to hospital, scans, tests, blood work, can’t lift my leg or my arm, nausea like you wouldn’t believe … but ZERO headache. After a couple hours I can move my leg and arm but still have pretty decent numbness and still do 11 days laters. Had no clue migraine could cause this kind of reaction!
Any-who, my concern is since I’m only in my 4th hour of knowing I’m the newest member of the migraine club, what should I do first? They prescribed Topamax which I took the first 25mg instantly as my left side is still partially numb and the headache just needs to be gone. But I’m not a fan of prescription drugs, in-any-way. I prefer medical herbal remedies (wink) to stave off the most severe pain at night but that’s not an option while I’m at work or amongst the people. And other than the weight loss (umm, yes please) I’m not liking any of the side effects especially since confusion and brain fog is one of my migraine symptoms that I’d like to resolve ASAP!
Any help on where to start and what to do first would be greatly appreciated. I wish I knew what trigger to look for but I didn’t even know I had this so finding a pattern for symptoms I’ve been living with for so long, I don’t even know what “normal” looks like anymore 😀