alexavecchione
The way we discuss and describe migraine can be so personal. For example, some feel very comfortable identifying as a "migraineur" while others prefer more person-first language, like "person with migraine".
What language do you use to describe your experiences with migraine? Are there any terms associated with migraine that you either resonate with or find stigmatizing? All perspectives are welcome here!
amy6 Member
I cringe when someone says “Oh you have a headache?”
I reply “No I am having a migraine attack” I want to be as transparent as possible, there’s so much more to a migraine than head pain. Some people are open to hearing about it & others aren’t so you have to read the room. But I am firm on correcting the fact that I am having a migraine attack, not a headache. Even when I’m dealing with medical professionals.
Melissa Arnold Community Admin
rav3n63 Member
Jilllessa Member
After years of not going to regular doctors for my migraines because they had nothing to offer me finally hearing about new medication‘s. Went to my PCP to ask her about them and the first thing she said was you just have headaches you should get a massage. It wasn’t until my next doctor asked me why my kidneys were so bad and how much Advil I took That I mentioned that I take hundred of Advil a month because I had migraines and she listened and gave me some medication
Nancy Harris Bonk Moderator
Thank you for sharing your experience, kind words and joining the conversation. You're not alone in having a difficult time with loud noise and bright lights - many of us deal with these triggers as well. Have you seen our information on vestibular migraine? If not let me share that with you ;https://migraine.com/search?s=vestibular%20migraine
Good to hear massage is beneficial. I love a good massage!! You just reminded me I have a gift card for one I need to use!
Sending you pain free wishes, Nancy Harris Bonk, Patient Leader/Moderator (Team Member)
Holly Harding Moderator & Contributor
Massage can be a terrific intervention for migraine- even serving as a preventative measure if employed regularly. Unfortunately, it is out of reach for most people due to its expense. Frequent, or chronic, migraine can wreak havoc on our musculature and skeleture. So many of us labor through attacks in the fetal position - wracked with pain- with our shoulders attached to our ears. It can take a few sessions to release the resulting tightness and if we have repeated attacks in the meantime, we then have more work to do. Still, it's a worthy goal. Wonderful to hear you are working toward it and finding some success and relief.
I love massage therapy and wish I could afford to seek it out more regularly.
And you're right, it is so important to find a qualified practitioner as a massage therapist who is unfamiliar with migraine can inadvertently work too deeply and trigger an additional attack. I've experienced that before- have you?
And yes! While I don't have vestibular migraine, I have chronic migraine and struggle with the bright lights and loud noises that can come with TV and movies. Just this morning I watched a musical performance of my favorite singer on TV and was surprised by a strobe-type lighting effect (with no warning - as they usually offer) and it has thrown my entire day off. Very frustrating! Like you, I keep the volume low or off and keep the bright feature very low.
Thank you again for sharing with us. Nice to connect with you here. Warmly - Holly (team member)
migrainessavedmylife Member
CommunityMember50e136 Member
Rebecca C Moderator
https://migraine.com/blog/cefaly-migraineurs-review
valdeench Member
I know this is crazy but I tell my family what color my migraines are. The colors from best to worst are: blue, green, gray, red and black. They know if it's red or black I'm off to bed.
Tonya Henry Moderator & Contributor
ayl88joanie Member
It’s purple and pink for me.