Mid sleep migraines
Me again, writing as worried and upset as last time. I started randomly waking from migraines during summer of 2019. It would be 1x month, a few months and a row. Then the next few months would be ok. Once I started Botox, this stopped during cycles 2 and most of 3. It is happening again and I have had 2 more migraines per month on Botox cycles 3 and 4. I had an amazing result with Botox cycle 2. So confused. No idea how to prevent REM sleep migraines. Please help. These migraines are really life ruiners.
Hi,
, thanks for stopping by to update us. I'm sorry to hear you are having migraine attacks even with Botox. That's tough. I see you had a conversation with Nancy in March. Here's a link to that: https://migraine.com/forums/botox-treatment
Have you had a sleep study done? There are so many things going on in the body and brain while we sleep that can affect your health. Additionally, do you have rescue meds or anything else besides Botox that you take during a migraine? Has your doctor weighed in on this at all? I'm also curious to know if you've identified any migraine triggers, like weather changes or certain foods. They can also impact your sleep health.
Truthfully, not every medication is right for every person. Botox may not be the right fit for you. While I know you said previously that Botox was your last hope, there are SO many options available today, like biofeedback, nerve stimulators, medical cannabis if it's available in your area ... try not to panic or lose hope. I can understand your worry -- do what you can to take good care of yourself and focus on one day at a time.
If you are looking for a different perspective on this, you may want to visit our sister site, www.sleep-disorders.net. They may have members of their community who have been through similar experiences and insight we don't have here. Just a thought.
I'll be thinking of you -- keep checking in with us! Hugs.
Melissa, migraine.com team
