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migraine deja vu

Hello everyone, I am so happy I found this forum! I hope to find more people who have the same symptoms as me , I am searching for answers for a few years now.
With an average of 1 time a month I have these strange nighmare deja vu attacks during the day, were I hear people talk and I am suddenly in a situation which makes me feel I been there before. Very scary, I feel nausea after and allways have to cry a bit. That first day it starts with a lot of swallowing reflex mostly during the night. These attacks are there the whole day and then the days after , like the whole week almost, I feel nervous and scared. I do have a history of more normal migraine attacks were I had to lay in bed for a day feeling sick but I never have those anymore. Anybody recognise these sympthoms? My doctors doesnt have a clue..I am 50 years old so there might be also some changes in my hormones going on. I hope to get in contact with people who have the same, and most of all, is there any medication for that?

  1. - Welcome! We're so glad you found us, too! This is a great place to connect with others and find support and information. A lot of what you describe we've heard of before and illustrates the fact that migraine is a complex neurological condition, and not just a bad headache. Nausea is a common symptom: https://migraine.com/video/secret-handle-nausea. We also hear many people reporting feeling a range of emotions either before (prodrome), during, or after (postdrome) an attack which can last days: https://migraine.com/video/missing-prodrome-signals. And: https://migraine.com/stories/making-more-emotional. Here is a mention of issues with swallowing: https://migraine.com/forums/difficulty-swallowing. I'm sharing all these resources with you to show you that you are not alone in your experience. No two people have the same combination of symptoms, triggers, or experience of pain. We do hear many people talking about how migraine evolves. That has been my experience (I'm 52 and have had migraine for 4 decades) - the way it presents now is very different from how it was years ago. I agree that hormonal changes can be key in why migraines change. Hormonal changes is a major driver for migraine attacks: https://migraine.com/migraine-triggers/hormonal-changes. While migraines can evolve, we want to pay attention when something changes in a new or troubling way. While it may be normal, it's important to discuss with your doctor- which it sounds like you're doing. I hope you'll take time to look at some of the resources I've shared with particular attention to the community comments that follow each piece as it may give you a place to connect with others on specific topics and help you see you are not alone in dealing with them.
    Because you asked about available treatments- I will share there are a lot of options these days: https://migraine.com/migraine-treatment. Some prevent, some treat- and others deal with specific symptoms (like nausea). What kind of treatment regimen do you have currently?
    We are here for you and so glad you're with us! We look forward to getting to know you more! Warmly- Holly -migraine.com team



    1. - I forgot to share the resource on deja vu: https://migraine.com/stories/deja-vu-jamais-vu. Hope this helps. Warmly- Holly -migraine.com team

    2. Thank you very much for the links much appreciated!

  2. Hello I hope the article Holly has offered helps you find the answers you seek. Although I do not share the same symptoms, , I truly feel for you as you tackle migraines and these deja vu episodes. Researching, I did find a forum that has a post similar to yours above on the Epilepsy Foundation site with other member input. https://www.epilepsy.com/connect/forum-archive/living-epilepsy-adults/intense-deja-vu-and-migraines Hope it helps. With thoughtfulness, Rebecca (community moderator)

    1. Rebecca thank you very much for this link, I read also about the connection to a possible epilepsy, but since I do have a history with normal migraine I dont think have epilepsie. The doctors doesnt have a clue at all. Thank you

      1. So sorry to hear your doctors are coming up blank when it comes to offering solutions for your condition. Have you tried being evaluated by a migraine specialist? These people received specialized training on the topic of migraine and can therefore have a deeper understanding of the condition and related treatments. If you'd like help finding one in your area, please let us know. We have some resources that may help. Thinking of you- Holly (migraine.com team).

      2. Hi - Sorry for the confusion - I forwarded the link to let you review the comments on the deja vu feeling you were getting, not imposing a diagnosis of epilepsy. I sure hope that you've found some other accounts with reference to this. How are you? I hope well. Sending healing and caring your way - Rebecca (community moderator)

    2. Hi! So it turned out to be epilepsie after all, never expected that! So a feeling of deja vu can definitely be epilepsie!

      1. Oh, how interesting. Thank you so much for circling back to us to let us know about this diagnosis of epilepsy. How are you? And how has this diagnosis changed your treatment plan in general and specifically in relation to migraine? I know there is an overlap of medications that treat both conditions and that symptoms can also overlap. We'd be interested to hear where you've landed in managing these conditions and how you are feeling about it all. I suppose it may be a relief to have some answers after all the uncertainty and fear. Thinking of you and again- thank you for letting us know about this. We care about you. Warmly - Holly - migraine.com team

      2. Wow, I'm so glad you went through the hard work of getting this figured out. Hopefully you are now on the right medication and feeling much better. <3

        I want to let you know that we do have a website for people with epilepsy, if you are looking for more specific support/resources. The address is www.epilepsydisease.com. We are always here for you, thanks so much for coming back! -Melissa, migraine team

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