I'm new to the group. I have been reading many articles and posts and they are very helpful!
I have a story and questions below and hope for some feedback please.
I typically have an average of 2 migraines a year with aura and headache. I am lucky compared to what many of you go through with migraines.
In the last 5 years, I've had many complex symptoms that led me to many specialists trying to figure each symptom and it's relation to each.
For years, always tired and always felt like I was coming down with something. But 5 years ago it became more frequent and affected my balance somewhat. Always a diagnosis of 'it's a virus'.
Shortly after, neuralgia hit with stabbing ear pain, then wicked vertigo episodes.
Alot of arthritis in my back.
It got in the way of life. Retired early as my days were unpredictable.
On top of all this it strained relationships with some family. Unseen illness is hard to understand when it's not visible. It leaves us somewhat isolated.
Along the long road, I did get a diagnosis of Epstein Barr Virus for the reason I was always so tired and not feeling well!
A year ago an ENT Dr I was seeing dx me with Labrynthitis. He referred me to a Neurotologist. I saw him and was diagnosed with:
Carotidynia (Fay Syndrome)
He didn't see labrynthitis.
I was shocked! It made no sense to me as I didn't expect that.
He gave me a sheet of foods and beverages that likely trigger migraines and suggested I can try some medications.
1) Has anyone had a diagnosis like this? I was taken aback. I couldn't process this so I didn't know what to ask.
I filed all that information away for the time.
Only recently I looked into it more. I found this website and started looking at peoples stories and symptoms and that not all migraines come with an aura and pain, which is what I would have. (5 days ago symptoms started for 2 days, migraine with the aura/pain day 3 and residual still 2 days after)
2) Is it likely I do get migraines without the aura and pain but that other symptoms I get like nausea, more frequent stomach upset, tired are signs I am getting a migraine?
3) Anyone try a chiropractor?
I have a family member that is always saying 'go to a chiropractor'. But I have alot of arthritis in my back and my rheumatologist said no for the arthritis so makes me nervous to do chiro.
Sorry for a long story.
I appreciate any input.