December 18, 2015
I have tried everything to reduce the daily chronic migraines. This year I had 3 nerve decompression surgeries and 1 follow-up: Occipital, Temporal, and Frontal. I have not had any changes in the severity of my migraines, the only positive outcome is that my neck and shoulders don't hurt nearly as bad from the occipital decompression. Has anyone had any luck on any of these surgeries?
Nancy Harris Bonk37
December 19, 2015
Hi Jessie Brown,
Thank you for sharing your story with us. I've not had this surgery, but hopefully others will be along shortly to share their experiences with you.
It may feel as if you've tried everything for migraine, but that really may not be true, so don't lose hope! There are over 100 medications that can be used to treat migraine, and if you add up the different combinations, that number goes up greatly. And it would take 25 years or so to try each medication in the correct manor, at the proper dose. Let me share more information with you on this; https://migraine.com/blog/migraine-management-essential-4-preventive-treatment/.
Migraine is thought to be a genetic neurological disorder that is managed, not cured at this time. Trigger identification and management plays a vital role in a good migraine regime. Have you kept a detailed migraine diary recently? If not I would encourage you to do so because if we can identify and manage our triggers, we may be able to reduce our attack frequency and severity. Continue reading this article for more information; https://migraine.com/blog/keeping-migraine-diary-basics/
Invasive surgeries may temporarily reduce one trigger and help with pain, but most of us have many more triggers to contend with. We do have some research on nerve compression surgeries that are not real positive. Let me share this with you here; https://migraine.com/blog/migraine-trigger-site-deactivation-surgery-studies-not-convincing/.
Keep us posted on how you are feeling,
January 21, 2016
Hihi there Jesse I had nerve decompression surgery I had six sites done and I still have migraines I'm 3 months out of surgery I my migraines come as they feel like it prior to the surgery I had migraines everyday all day and no medication was working anymore I had built a tolerance I guess nothing was working and I have gone to many doctors in New England and all around I think the severity intensity of the migraine are far more tolerable they're not as intense before the surgery it felt like somebody just took a gun shotgun and blew part of my head off it just was intense I don't know how far you know your surgery when I did themi was at the end of my rope technically I'm still in the honeymoon period where I shouldn't be having any headaches soma little nervous
June 14, 2016
I had migraine surgery done six weeks ago on my temples, back of head, above my eyes, and nose. It really worked! My head is still sore and numb at some places, but it's improving. My migraines are SO much better. It's like night and day difference. Oh, and neither Botox nor nerve blocks helped me before, but the surgery still worked. I got improvement almost immediately. What my doctor does has a 90% success rate and he's never had anyone get worse. So sorry for all those that weren't helped or got worse through surgery.
July 19, 2016
Where is your Dr located?
July 19, 2016
My doctor is David Branch, MD in Bangor, Maine. He is an amazing doctor!
By the way, since I commented here a month+ ago, I have still been improving! My feeling is gradually coming back and the soreness from the surgery is much improved. I am so happy to be feeling better and doing more normal things! 😀
August 6, 2016
I'm looking at both occipital nerve stimulation as well as nerve decompression. I'm fortunate that Bardia Amirlak is here in Dallas (considered a expert in nerve decompression). I also have access to the Omega procedure (nerve stimulator). Which one is a better option? Anyone have both?
August 8, 2016
I had nerve decompression surgery. Although I do not have any experience with the Omega procedure (I didn't need to--the nerve decompression surgery I had worked GREAT!), I have read about it some. From what I know about both procedures, I would definitely recommend nerve decompression (I am trying to be unbiased here). For one thing, with nerve decompression, you have nothing implanted at all. You heal up (of course it can take awhile for the feeling to come back, but that was/is not a big deal to me) and then that's it. People have no idea, unless they were told, that I had surgery on multiple spots around my head--everything is hidden so well. There's no wires or batteries or anything. Another thing is, with anything manmade, there is always the chance of it malfunctioning. Also, are follow-up surgeries required to maintain the battery? If so, that is not something I would want to go with. I'm no doctor, just a former migraine sufferer happy to have finally found something that worked and living a more normal life than I have in a long time. I share my experience in hopes that it will help someone else. I wish you the best...