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Ongoing migraine symptoms?

Hello, just wondering if anyone might relate to my migraine experience and perhaps any suggestions?

My previous experience has been that I had my first migraine when I was around 7y.o.. When I was around 10y.o. during another I was taken in to see the doctor who identified it as a migraine. I’m lucky only to have them only once every couple of years or so. I’ve found taking Panadol at the outset would nip it in the bud typically, so they’re perhaps even less frequent than they might be 🙌

A standard migraine involves an aura with visual disturbances (field of vision, spotted vision, ), weak ‘shooting’ pain and tension around temples, nausea, light and noise sensitivity and vomiting.

I’ve had a few experiences in recent years that I’ve only recognised recently as potentially being attributed to migraine in retrospect:

- Summer 2020 - I experienced a change in vision (blurry, occasional blind spots), checked by optometrist and given the all good, I also had an accompanying sense of numbness at the time (in an experiential way as opposed to in terms of any physical loss of sensation) and it lasted a few weeks or so all up.

- Then around Winter/Spring 2020 I experienced that similar sense of numbness yet to a greater noticeable extent, lasting a bit over a month.

- In early 2021 I experienced vision issues (blurriness) for a couple of weeks, optometrist checked and all fine, began at a similar time to having quite significant and painful period symptoms.

(My experience of numbness aligns very closely to what is described as dpdr (depersonalisation déréalisation) which from my understanding isn’t an uncommon migraine symptom. And vision changes I’ve suspected to be related to migraine in retrospect also.)

So that brings it to the present! From Jan 30th when I was working remotely and aligning with the tail end of my period, I had initial pain around my eye similar to what I’ve experienced with migraines previously. Sleep helped, but then noticed a subtle change in vision (blurry) which is constant and ongoing currently, but almost forgettable. It would become more noticeable in periods of high activity (at work, with exertion perhaps??). It would be fine and I wouldn’t notice it overly, but then every few days or couple of days I’d have more of an issue, then taking Panadol for tension headache around temples, nausea or dizziness/lightheadedness. Questioning whether it was all in my imagination, eventually I saw a doctor after 2 weeks who checked my eyes which were fine and she suggested i come back if it got worse and we could hesitantly try some migraine medications - however I just left it as could still go about my day to day and work by taking Panadol if it got really distracting/bad. I was provided some neurofen to accompany Panadol when needed.
At the end of February I noticed I had stopped having pain and nausea as frequently.
Start of March for a few days I noticed significant uncomfortable tension around my jaw, took Panadol at a point which helped relieved it somewhat.
Currently I’m experiencing persistent vision disruption (kind of blurryish) which is fine haha but sometimes worse but can still see!? And then almost when I think it might be going away, I get nausea or more of my typical migraine symptoms.

I know I’ve written a bit here, so thanks for reading right through 🙏 Thinking it might just be completely fine/resolved one day - but also it has been a while haha
Not sure if I should go to the doctor or to the local migraine clinic or just accept it as is, because although it can be quite distracting, it’s not overly impacting my life. And also don’t know if it would be dramatic or sensible going to the doctor for this.

Some unqualified thoughts…I know there’s a lot of unknowns about it migraines in general, but was wondering if it could be:

- a ‘persistent aura without infarction’?
- TMJ migraine? One orthodontist recommended having my jaw broken when I was younger, but chose not to…
- Diet?
- Hormones?
- Irregular sleep pattern and stress, now routine and relaxed

Thank you for sharing any suggestions or similar experiences 😊🙏


  1. Thank you for reaching out and sharing your journey with us. I hear how frustrating these symptoms are, and can tell you you're not alone. As much as we'd like to tell you exactly what's going on, only a medical professional can do that. Let me see what information I can give that may be beneficial.

    It's not uncommon for our migraine patterns and symptoms to change over time, mine sure have. When this happens it's a good idea to let the doctor know so he/she can make sure everything checks out OK.

    Some symptoms of migraine with aura can include visual disturbances, numbness and tingling, trouble with language skills and more. This information has a good breakdown of some of the different types of migraine; https://migraine.com/migraine-types.

    Good to hear your eyes check out OK, that is a great first step. The next thing that comes to mind is getting an accurate diagnosis. There are many different types of migraine and/or headache disorders, and having that accurate diagnosis is essential in getting the proper treatment. If there is a migraine clinic near you I would encourage you to check that out. Here is information on how to prepare for your next doctors visit:
    https://migraine.com/getting-help/six-tips-for-migraine-patients-at-your-doctor-appointment
    https://migraine.com/getting-help/prepare-docto-visit

    Here's the thing - when we have three or more severe attacks a month it's time to discuss migraine prevention with the doctor. Episodic migraine (14 or fewer migraine/headache days a month) can transform into chronic migraine (15 or more migraine/headache days a month) fairly quickly and no one wants to be chronic. https://migraine.com/migraine-treatment/prevention-medications.

    Another things to discuss with your doctor is taking Frova, a long acting triptan just before and during your period. Many women have found this to be very beneficial;
    https://migraine.com/blog/short-term-option-for-migraine-prevention-frova/
    https://migraine.com/video/identifying-menstrually-associated-attacks.

    Those of us with migraine have overly sensitive brains and the slightest upset in routine may trigger a nasty attack. Keeping a regular sleeping and eating schedule is vital in managing migraine disease. Too much and/or too little sleep and skipping meals can lead to an attack for many, myself included.

    I hope this information is useful, will you let me know? Wishing you a low pain day, Nancy Harris Bonk, Patient Leader/Moderator Migraine.com Team

    1. thank you Nancy 🙏 actually really appreciate getting an objective perspective, and some great information to take into consideration going forwards! Have booked in for the doctor, and will go from there.
      All the best 😊


    2. Best of luck with the doctor! I look forward to hearing your update!! Pain free wishes, Nancy Harris Bonk, Patient Leader/Moderator Migraine.com Team

  2. I had a bad migraine just over a week ago and since have been experiencing exactly what you describe, with verbal problems too. feels reassuring to know i’m not alone in this so thank you, i hope we both find some answers soon!


    1. You're most certainly not alone, . Many people who experience migraine also experience symptoms related to aphasia. Aphasia can include losing the ability to speak or understand what someone is saying, difficulties with writing, or trouble performing and understanding mathematical tasks. If you have the spare time and energy, this article has information about aphasia in more detail: https://migraine.com/blog/migraine-symptoms-transient-aphasia. Wishing you well, - Cody (Team Member)

    2. Somewhat reassuring to hear of your similar experience too, but really just sorry you’re going through this, and with some verbal problems as well. Hope your going well and find the answers you seek🤞🌸🌻🌷

  3. The way I see it, Becky, if you have a migraine clinic near you, it is worth taking the time to explore this in detail. Even if you feel like you're getting by, there's still something funky going on ... and as Nancy noted, it could quickly evolve into something more debilitating. How are you feeling this week? We're here to support you, no matter what! -Melissa, migraine.com team

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