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Has anyone experienced these vestibular migraine symptoms?

I am 32, have had vestibular migraines since I was 6. Docs thought I had simple vertigo until I was 19 and was given Meclizine, which did not help. Starting to wonder if they were wrong with this diagnosis too, because whenever I describe my migraines to family members who also have vestibular migraines, they say their migraines are quite different from my migraines. Another reason is I have been on every possible medication for vestibular migraines (up til 2017, because I no longer have health insurance), and they either barely worked or didn't work at all.

I have not been able to pinpoint any causes. My migraines are cyclical; They happen roughly every 2 1/2 months for 4-6 days at a time, and I can give a rough estimate of when they'll occur on a calendar. It is extremely difficult to function during those days. Vomiting on the first 1-2 days; all 4-6 days I'm dizzy, have the tension in my forehead, and an odd stomach squeezing feeling.

Something that's kinda weird is a little over 10 years ago, I started having dreams where I was really dizzy because I was spinning down into a hole. Then I'd wake up with a migraine, and, I was dizzy. These days, I don't have the dream where I'm falling down a well or a hole, but I can still FEEL myself getting dizzy in my dreams. Earlier this morning, I actually remember thinking while I was sleeping, "Great, now I'm going to wake up with a migraine." And I did.

Can anyone tell me if any of this is right on par with what you or a loved one experiences? I would appreciate any answers. I figured since my headache specialist wasn't able to help me, maybe someone on here could point me in the right direction.
Thanks!! 😀

  1. Hi - I have vestibular migraines, but your experience is quite different than mine. I do not have cyclic vestibular migraines, not knowing exactly when or how often a migraine episode will hit me. And, I do not dream of spinning or going down a well or a hole and wake knowing migraine will hit. Stress is a huge trigger for migraines. I wonder if this is what is happening to you. Your vivid dreams are stressful and kicking in a migraine. And it must be so so frightening knowing each 2-1/2 months it will occur. As to the cyclic component, I am quite curious to know if anyone in the community has insight into this. Unfortunately, I know I am of little help to you. But I did want to stop and drop some links that may help. The first https://www.headachesurgery.com/bad-dreams-and-waking-to-a-migraine/ (not pushing surgery or the thought of it) is referring to the stress that causes migraine and is an interesting read. Another link is https://migraine.com/living-migraine/stress-types-trigger. Have you considered starting a very detailed journal - writing about patterns with food, exercise, sleep, work, events? It may give some insight to help reduce the stress or triggers causing these migraines every 2-1/2 months? Hoping some community members chime in and help out with understanding your migraine disease. We will check back in with you ... Rebecca (comm advc)

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