May 1, 2017 at 8:15 pm #89033
I have been dealing with chronic migraines since 2011/2012. In August of 2016 I started experiencing new symptoms of paralysis/numbing in my right side of my face including my tongue, lips, eye & part of my neck. The paralysis/numbing occurs either as a warning of an oncoming migraine or can occur hand in hand with one of my migraines. I have experienced 15 Ocular Migraines on average for the last 6 months (though I do have cluster headaches in addition to these). I currently have a referral to my Neurologist to discuss the possibility of Botox injections. I have had 4 back surgeries, 3 of those involved my neck. I am curious to see if anyone else has experienced these symptoms & what has helped or work for them in relieving issues pertaining to Ocular Migraines.
May 13, 2017 at 5:46 pm #89654
Nancy Harris BonkModerator
Thank you for reaching out and sharing your story with us. I’m sorry to hear you’ve having an uptick in migraine symptoms.
Ocular migraine is not a diagnostic term, rather a descriptive one You may be experiencing migraine with aura, but only a qualified doctor can diagnose that after you have a complete neurological exam, he discusses your symptoms and goes over your medical history and your family’s medical history. Here is information on migraine with aura; https://migraine.com/migraine-types/migraine-with-aura/. This article has more information on a few different kinds of migraine; https://migraine.com/blog/those-ocular-optical-and-ophthalmic-migraines/.
I hope that helps, let me know.
August 11, 2017 at 10:55 pm #94920
This is late but I am just stumbling across this website so I just joined. Yes, I’ve experienced all of what you have mentioned. The migraines first began in my mid-twenties with those symptoms so I thought I was having a stroke. My PCP at the time referred me to a pain management center (with a neurologist). During that time, I experienced aura symptoms along with head pain. Now I experience more of the aura symptoms without as much pain.
I had the nerve block injections that did not work for me and then the radiofrequency ablation that worked for several years. I was also told I had a herniated disc/pinched nerve which could have caused some of the migraines (shoulder pain). I was told that the RA could work and could wear off after a few years. I am passed the stage in which it wore off. Before I could not feel a certain section on my neck due to the ablation but the numbness in that area is no longer there and the migraines have returned.
The aura has gotten so bad that it seems to occur several times throughout the day (daily).
I am now seeking care with a new practice since the pain center I used before isn’t covered by my insurance plan. The neurologist is great in which he offered several options – none included surgery or a procedure but the fact that he offered natural options was a plus – Vitamin B2 (twice daily) or Butterbur. (I am not including the names of the prescriptions he mentioned) I’ve only tried the B2. This is something that I definitely have to take twice a day. Whenever I try to skip a day, the distortion, lights. flutters are more frequent. My next step is to try butterbur.
I’ve also made changes in eating habits, being more of a stickler when it comes to reading labels and staying away from GMOs, eating more organics. Oh and including exercise – that is something all of my doctors have said I need to incorporate, daily exercise.
Blessings to you and everyone out there that’s working to manage life with these add-ons 🙂