How do you feel about using technology to help manage health? Take our survey here.
caret icon Back to all discussions

CGRPS and Raynaud's

I posted this comment on Facebook and am looking for others with possibly the same experience and how long symptoms lasted and what you tried next:

Nothing has worked to stop my daily migraines including the CGRP's that my migraine doctor has tried. I had the first two injections of Emgality in March and after a week I noticed an increase in my Raynaud's symptoms. Upon research we saw that it can cause "auto amputation of digits" for people with Raynaud's who take these types of drugs. My specialist said to stop the injections, but I am still having very bad symptoms of numbness and tingling and pain that is extending into other parts of my body which hasn't happened before. She now wants me to try Botox but I had a previous doctor tell e that wouldn't be safe for me and am unsure what to do. I am worried that something even more serious could happen and feel like I may just have to live with the daily migraines. I do take amitriptyline which helps some but doesn't stop the daily pain. Has anyone else had issues with CGRP's and Raynaud's and how long did it take for the side effects to stop? Thank you

  1. Hi ! Thank you for sharing your question in our forums. Comorbidities can make treating migraine so complicated. I know this may not answer your question directly, but this article about Raynaud's may give you more information: https://migraine.com/blog/migraine-comorbidities-raynauds-phenomenonsyndrome. Hopefully, others in the community who have had similar experiences will jump into the conversation. In the meantime, are you considering the switch to Botox? If so, here are some tips Jaime shared for injection day: https://migraine.com/living-migraine/6-tips-prepare-botox-day. Please let me know if there's anything else I can help you with! - Courtney (Team Member)

    Please read our rules before posting.