I’ll let you know a little bit about my migraine (? never really got a proper diagnosis) story so you can hopefully help me out with advice or some suggestions 😞
Back in 2014 I felt a horrible pain in my left temporal alongside with some muscle weakness/numbness on my left arm. I immediately went to the ER and got a CT done, all clear. The pain never went away after that. Everyday, unilateral pain always on the temporal area - usually pressure like pain but sometimes stabbing, throbbing - can vary from left to right side but only on one side each time. Other bothersome symptoms that are often present are dizziness and muscle weakness in arm and leg. Also quite frequently pain around the eye, neck and shoulder pain.
I live in Portugal and I saw a ton of doctors, did a bunch of exams - all clear - and tried every medication. Nothing worked. They treated me with Botox in July 2017 and did nothing. I travelled to London and they tried a nerve block injection - also no response. I went back there again in December 2017 and they decided to try Botox again - it worked basically at 100%! So I repeated the treatment every 3 to 6 months there. Very costly and time consuming because I have to take the plane, get a hotel and pay almost 500£ for the treatment.
Problem is: the pandemic hit. Couldn’t travel anymore and the pain was coming back. Desperately looked for places here that did Botox for headaches and tried 3 treatments (at 2 different clinics). The first two helped the tiniest bit, the third did absolutely nothing. The product was the exact same (Botox by Allergan). Can the doctor technique do THIS much of a difference??
Currently I’m right back where I was years ago and it’s so devastating. Physically and mentally. I literally tried this last Botox 3.5 weeks ago and I’m in so much pain. I have an appointment booked in London for October but I’m honestly dreading that one miraculous cure simply stopped working for me.
In the meantime my neurologist here told me to try Aimovig. I got my first shot on Monday (2 days ago) and so far nothing.
If anyone relates to these symptoms and has any advice I’d so grateful if you could share 🤍