Hemiplegic Migraine and Peripheral Neuropathy...Could this be a discontinuation syndrome from the cessation of CGRP therapy?... By Elizabeth Roberts-Zibbel4 min readBookmark for laterReactions0reactionsComments14 comments
My Experience with the "Daith" Piercing...There is no cure - not medication, surgery, Botox, TENS units, trigger point injections, or even the CGRP drugs, and certainly not a difficult to correctly... By Elizabeth Roberts-Zibbel3 min readBookmark for laterReactions0reactionsComments61 comments
Infusions ...I’m on monthly SubQ injections of CGRP meds & sometimes they seem to help, but others (like today) not at all....Reactions0reactionsComments2 repliesTreatment
Optimizing Medications...I think Aimovig and Nurtec both work on CGRP receptors. I was considering trying Ajovy which, I believe, works on CGRP more directly....Reactions0reactionsComments2 repliesChronicTreatmentCGRP
Migraine and COVID-19 Vaccines...Experts in headache care and vaccine research studied injections of Botox (onabotulinumtoxinA) and calcitonin gene-related peptide (CGRP) pathway monoclonal... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments6 comments
The Research of Psychedelics for Cluster Headaches (Part 2)...These psychedelics, along with the CGRP medication FDA-approved for episodic (Emgality®), provide hope for a better quality of life.... By Ashley Hattle4 min readBookmark for laterReactions0reactionsComments5 comments
Pre-pregnancy ...I've been using Aimovig which is a CGRP....Reactions0reactionsComments2 repliesFriends & FamilyTips & AdviceTreatment
How My Migraine Journey Started...The calcitonin gene-related peptide inhibitors (CGRP) have been lifesavers. I am currently receiving Vyepti infusions every three months.... By Tom Picerno3 min readBookmark for laterReactions0reactionsComments0 comments
Been in a CGRP study for the past 5 years...I have been in a study for CGRP (Amgen sponsored) at the Jefferson Headache Center in Philadelphia under Dr. Silberstein....Reactions0reactionsComments5 repliesCGRP
Have you experienced any side effects from CGRP medications?...If you have tried any of the new CGRP medications (Aimovig, Ajovy or Emgality) have you experienced any side effects?...Reactions0reactionsComments27 replies
Severe Allergic reaction to Ajovy or CRGPs...My doctor and I are considering trying one of the other CGRP medications (supervised)....Reactions0reactionsComments8 replies
Migraine and the Full Moon...My friend and research nurse H, at my most recent CGRP treatment, agreed, adding, "We actually see quite a bit of that here, menstrual migraine lingering... By Elizabeth Roberts-Zibbel4 min readBookmark for laterReactions0reactionsComments8 comments
The Demanding Cycle of Trying New Treatments...The recent CGRP drugs initially had a LOT of hype about dramatic impacts for the majority of people who tried them.... By Holly Harding5 min readBookmark for laterReactions0reactionsComments17 comments
Cognitive Decline and exhaustion with CGRP / Topamax...Hi everyone, I'm curious if anyone has experienced severe exhaustion or inability to do simple tasks like write an email with a CGRP?...Reactions0reactionsComments2 replies
CGRP Injections Causing Weight Gain?...I’ve gained about 10lbs since I started my 1st CGRP injection over a year ago. It worked fairly well for a while but lost effectiveness over time....Reactions0reactionsComments7 replies
Woman in Idaho Starts Worldwide Migraine Fundraiser Event to be Held in April...She is also in a clinical trial for a new CGRP antibody, and whether or not it helps her, she’s happy to give to the migraine community by participating... By Lisa Robin Benson4 min readBookmark for laterReactions0reactionsComments1 comments
AO Biome Mother Dirt - friendly bacteria...I am hoping it will be more affordable than the CGRP medications....Reactions0reactionsComments1 replies
Intractable Migraine and Me...This one was brought on by the new anti-CGRP drug Aimovig.... By Jaime Sanders5 min readBookmark for laterReactions0reactionsComments9 comments
Migraine Frequency Increasing with Age...I am 47 and I have suffered migraines my entire life. As a kid I recall taking asprin every time I had a "headache" kids didn't get migraines back then... By migraine1231 min readBookmark for laterReactions0reactionsComments9 comments
Anyone know about "Aimovig - CGRP monoclonal antibodies"?...QUESTION: Does anyone know about "CGRP monoclonal antibodies" and the new FDA approve med "Aimovig"?...Reactions0reactionsComments1 replies
