Fainting, vertigo, right arm paralysis, vision loss
Hi,
I have been hospitalized with migraine a number of times. My brain MRI shows many lesions and I am only 56. I have migraines 20-25 days per month. I have vertigo, vision loss, temporary paralysis on one side, extreme weakness to the point of not being able to walk, slurring of words, inability to find correct words, nausea, vomiting, frozen bowels during migraine, body/joint pain and blackouts.
I've been to 2 headache clinics and 1 neurologist. No one has found any helpful medication and I've tried just about everything out there for prevention and to abort. I'm completely disabled and no doctor can help. I'm in the Denver area.
I'm desperate. Does anyone have similar symptoms or experience?
I've also been tested for Lyme disease and MS (can't rule out due to lesion location but not enough positives to diagnose either).
Hi Paulad,
Thank you for your post. We are so happy you are a part of our community here at Migraine.com. While I believe community members will be able to provide more personal accounts related to your experience with chronic migraine, I thought you would find a few articles helpful. They could provide some insight into the topics you've brought up. We want you to know you are not alone and the symptoms you experience are common amongst other migraineurs. The following link will connect to a webpage which identifies and discusses various symptoms associated with chronic migraine, specifically feeling lightheaded, vertigo, and vision changes - https://migraine.com/migraine-symptoms/. Also, this article - https://migraine.com/blog/migraine-symptoms-hemiplegia/ discusses hemiplegia, which is partial body paralysis which you may find helpful. Today's article most recently posted on our Facebook page discusses how migraine attacks affect our language and memory. You may want to check it out - https://migraine.com/blog/wait-what-was-saying/. The community member comments may provide additional insight as well. Furthermore you mentioned seeing many doctors. I am not sure if you have seen a migraine specialist, however apologies in advance if you have, as the following articles discuss migraine specialists and provide resources on where to find one - https://migraine.com/blog/really-find-headache-specialist/, https://migraine.com/blog/how-are-migraine-specialists-different/, https://migraine.com/blog/looking-for-a-migraine-specialist/. And finally, I am so sorry to hear you experience migraine attacks 20-25 days per month. It must be so debilitating. The following article is written by a fellow migraineur. She identifies varying self care tips, tricks, and insights into ways to manage the symptoms in the midst of an attack - https://migraine.com/blog/a-list-call-for-creature-comforts/. The community member comments may be helpful as well. Again, thank you so much for your post. Please do not hesitate to reach out again when needed. We love hearing from you. Wishing you all the best.
Warmly,
Meaghan (Migraine.com Team)
