The Importance of the Chronic Pain In America SurveyWhen I became chronic, I found an amazing migraine community. But it is only over the past few years I’ve realized that I’m also a member of the broader chronic...Reactions0reactionsComments4 comments
What "Feeling Better" Means to MeThere used to be a time in my life when I thought I would get better. When I would wake up feeling refreshed and not fear that pain, discomfort and...Reactions0reactionsComments12 comments
Respect and Power at the Doctor’s OfficeFeeling powerless at the doctor’s office is something many in the community can relate to. From being misunderstood, to being outright disrespected, self-advocacy when it comes to wellness can be...Reactions0reactionsComments18 comments
The Cost of Wellness - Affording the CGRPsThose who are experiencing wellness for the first time in years because of the CGRP medications may be feeling as if they are living on borrowed time. This is due...Reactions0reactionsComments72 comments
I'm a Stay-At-Home-Mom with Migraines: Here's My PlanI’m a Virgo. This makes me a sensational planner with a fabulous attention to detail and an amazing knack for being right. Virgos are also modest. I’m not sure my...Reactions0reactionsComments0 comments
What It's Like to Live with Hemiplegic MigraineLately, the first obvious sign of a cluster of migraines coming is being very confused a lot of the time, feeling like I am in a maze of distorted mirrors...Reactions0reactionsComments37 comments
Three of My Wackiest Migraine TriggersOver the years, I’ve become my own migraine detective. I do my best to follow the clues my body leaves in order to understand what works best to keep my...Reactions0reactionsComments47 comments
CGRP Inhibitors and Realistic ExpectationsI've never quite understood the fatal attraction of rollercoasters! As the mother of three boys, I spent the better part of two decades trying in any way that I could...Reactions0reactionsComments22 comments
Parenting While Managing a Chronic IllnessWhether or not you have a child, most individuals would agree that parenting is hard. Although there is no right or wrong way to raise a child, new trends, latest...Reactions0reactionsComments0 comments
Finding Empathy At The Infusion CenterBeautiful smiles wearing masks as they get their ports accessed and other lines like mine hooked up. I’m in the company of other people there daily, whom I don’t know...Reactions0reactionsComments2 comments
Parenting and FatigueBeing a parent is a tiring job, and often, life with a chronic illness comes with fatigue. Together they can be a recipe for complete exhaustion and feelings of defeat...Reactions0reactionsComments1 comments
Validating Pain With MigraineI think we’ve all been at a point when we verbally express our pain, even if we don’t do it often, and have been met with an unkind remark. Some...Reactions0reactionsComments14 comments
Seven Tips for ParentsNavigating life with a chronic condition like migraine can be challenging. Adding children and parenting stress into the mix can make it feel like an impossible task at times. No...Reactions0reactionsComments0 comments
Prodrome, It’s Just the BeginningProdrome is the first stage of symptoms for a migraine attack. It can start hours or even days before the attack begins. It is subtle and often creeps into our...Reactions0reactionsComments42 comments
Which Came First - Allergies or Migraine?If you have seasonal allergies as I do, you know spring into summer can be a hard transition if you have migraines. I have lived with environmental allergies all of...Reactions0reactionsComments5 comments
Cluster Headache Diagnosis TodayIn part 1 of an interview with Bob Wold of Clusterbusters, we learned how long it took for Bob to receive his cluster diagnosis. We wondered what it was like...Reactions0reactionsComments2 comments
CGRPs – Navigating Wellness for the First Time in YearsMany in our community who are experimenting with the new CGRP therapies are experiencing a sense of wellness for the first time in years. With the emergence of freedom from pain...Reactions0reactionsComments50 comments
An Open Letter to My Doctors“Please don’t give up on me!” I find that thought going round and round in my head every time a doctor’s appointment is pending. It’s a silent plea that rarely...Reactions0reactionsComments37 comments
Lost in the Fog: Aphasia and Brain FogAphasia is a condition where the communication center of the brain has neurological issues. It normally occurs in people who have had a stroke. Migraine attacks have symptoms that are very...Reactions0reactionsComments44 comments
What is the INvisible Project?The INvisible Project is a magazine that aims to make invisible illnesses more visible to the outside. Each edition tells the story of ten people or families who live with...Reactions0reactionsComments2 comments