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My Opthamologist mentioned these glasses to me, explaining they do work for some people, especially those who are light sensitive with their migraines. Unfortunately for me, I do not have light sensitivity, so I have not tried them.
Another question. My migraines come on during the hours of 1 – 3 am every time. Obviously, they wake me up. This is the only time I have migraines. Does anyone else experience this?
ShirleyEH replied to the topic Aimovig: Have you tried it? Share your experience here. in the forum CGRPs (calcitonin-gene-related peptide) 1 hour, 12 minutes ago
I started Aimovig three months ago, after suffering from Chronic migraine for 52 years, trying every treatment with no success. Normal for me is 18 – 25 migraines per month.
The first month on Aimovig, I had 16 migraines .
The second month, just 13.
The third month, only 10.
@ShirleyEH, I have been on Aimovig for 2 months. My Neurologist told me that her patients tend to do better the longer they are on it. I don’t have a study to confirm this, it is anecdotal information passed on by my doctor. Hopefully some others will chime in with their experiences. Peggy (Migraine.com Team)
@ShirleyEH, you have a good question. Hopefully we can get some feedback from other community members on their experiences. (Peggy (Migraine.com Team)
I would like to hear from people who are on Aimovig – did your migraine numbers continue to drop the longer you have been on this drug? Thanks.
It has been three months since I began my Aimovig journey. The first month, I experienced a total of 16 migraines; the second month, I had 13 migraines. At the end of my third month, I experienced only 10 migraines. This is significant for me and I have decided to continue with the Aimovig. I don’t know if it is common for Aimovig to c…
@jbs18, thank you for joining us in this discussion. Officially, the symptoms you mention are not on the manufacturer’s list of adverse reactions. But we have many community members that have complained of these exact symptoms. Have you thought about going back on the 70 mg dose?
Peggy (Migraine.com Team)
I’ve been using Aimovig for the past 8 months. My former insurance company approved me for the 70mg and it completely knocked out my migraines. Having had to switch insurance companies for work related reasons, I was approved for the 140mg which I have taken for the past two months. As a result of the 140mg, I have been experiencing extreme…
Where would we go to report this? Would you share the link please.
Hi @bedk– Thank you for your question. Since migraines can be so different for each person experiencing them, it can be quite difficult to know the exact cause without first examining preceding events or triggers. You mentioned that your child was recently diagnosed with both ADD and Asperger Syndrome. I’ve included an article sharing how children…
Hi @clustermigrane, Thank you for reaching out to us with this question. Our moderator @nancy2 provided such a wonderful response. I’d like to focus in on one of the possible catalysts she mentioned…mold. Last year I learned there was toxic mold in the wall cavities in my apartment (and since, have had it professionally remediated). What I…
@forresthowie– glad you spoke about the conversations piece. I’ve had friends and family members who offer to come over to be with me while I’m battling migraine- they say they’ll just sit with me- that they’ll do the talking so I can just listen. It’s so kind of them, but it’s the listening that’s so hard. It’s impossible to focus- and the…
Thx for the encouraging words. I’m at the beginning of an attack now as I respond. These meds really aren’t helping me.
I’ll research your recommendations and talk to my doc about them next visit. I’ve tried neither. Ty so much for the advice. This community has been so helpful for me. Very grateful for it, and ppl like you.
I tried Aimovig, but the side effects did me in. So I moved over to Ajovy. It worked to some degree, but what really helped reduced the frequency of my migraines was when my neurologist suggested a low dose of Trokendi, 25 mg., along with the Ajovy. Together the two drugs made things significantly better for me. My neurologist told me that his…
I don’t know if this will help or not, but hang in there. I tried both topamax and Trokendi at different times and found that they reduced my migraine frequency, but I simply could not think when I took them. When the CGRP drugs came out, I ended up taking Ajovy monthly and my neurologist suggested a .25 daily dose of Trokendi because other…