Migraine Community and Headlines

DRoddington replied to the topic Have you experienced side effects from Aimovig? in the forum CGRPs (calcitonin-gene-related peptide) 5 minutes ago

7 weeks since first 140mg dose, 3 weeks since second 140mg dose. It hasn’t been of much help with headaches but it has produced constipation and severe lower back pain. Also, and most concerning, I’ve had a strange onset of Raynauds phenomenon that began a few days after the first dose. Extreme coldness, numbness, and loss of color in my hands…

Tina3256 posted an update 37 minutes ago

Not great

GolEm replied to the topic Side effect from B2? in the forum Natural Remedies 2 hours, 37 minutes ago

Thank you for waking up that old thread, AskKim! That is so reassuring. I started B2 at 100 mg a couple weeks ago in a white capsule, was getting gas and stomach pains, switched to a 50 mg yellow tablet, and then even cut that in half when my digestion was still out of whack. Now I am having terrible nausea at night, almost no appetite during the…

joytchr posted an update 4 hours, 6 minutes ago

Wondering about other migraine symptons like vertigo and tingling f the scalp, hands and feet. Those weren’t part of the survey. I consider those symptoms to be overlooked by many.

joytchr posted an update 4 hours, 8 minutes ago

Ok

Sodixie posted an update 4 hours, 15 minutes ago

Well

boldmaz replied to the topic 4-months of near-chronic "silent" migraine/ history of hemiplegic migraine in the forum General Discussions 5 hours, 44 minutes ago

Hi there,

Would it be possible for you to add me as a friend?

I have had almost complete vision loss in my right eye for nearly 3 weeks now and could really do with chatting with someone with similar symptoms.

Thank you

Cappucinno answered a question 6 hours, 56 minutes ago

Thank you Joanna. This has been a nagging question for me forever. I guess I should “go with my gut” and continue to switch over to all glass and hope I do not break them too quickly.

Joanna Bodner posted a new activity comment 7 hours, 18 minutes ago

First of all I’d like to welcome you to our community. Know we are always here for you…especially on the days that are not very good. Second, here is a link to the spoon theory that should help you. Within this resources there is a link out to the original author that discusses this concept. – https://migraine.com/blog/the-spoon-theory/. Hope…

Joanna Bodner posted a new activity comment 7 hours, 23 minutes ago

Hi there @bscott, Starting a new medication is very scary especially when their is concern for side effects. Did you discuss this concern with your doctor? Some of shared that starting at the lower dose may help. Someone in our forum expressed the same concern if you’d like to take a look at this feedback. – https://migraine.com/topic/dosage/.…

Joanna Bodner posted a new activity comment 7 hours, 31 minutes ago

Hi there @2iv2m9, I am so sorry that you are experiencing these feelings. Living with the horrible pain of migraine is absolutely so challenging. Know we are always here to lend & ear for support. Truly hope you are able to be in a bit better spirit today. -Joanna (Migraine.com Team)

Joanna Bodner answered a question 7 hours, 41 minutes ago

This is interesting and thanks for your question. I personally do not know of any information related to migraine and plastic containers, but hopefully others might be along to share some insight. I have heard it is not good to microwave them especially once they start to break down & get that rough texture, but honestly do not have any resources…

Cat started the topic Am I Alone? in the forum General Discussions 12 hours, 58 minutes ago

Is there anyone else who has a Congenital Heart Defect, Liver cirrhosis (caused from heart medications), and Migraines? Please I need to know i’m not alone in having these 3 things.

Cat replied to the topic Aimovig: Have you tried it? Share your experience here. in the forum CGRPs (calcitonin-gene-related peptide) 13 hours, 34 minutes ago

anyone know where I can find out more information about amivog and if it is safe for someone who has congenital heart defect, atrial fib? Also same question for Emgality.

Neisee voted in a poll 13 hours, 48 minutes ago

Neisee commented on the post, Unsolicited Advice 13 hours, 56 minutes ago

EVERYDAY I’m asked, “Have you taken your meds?” Being a chronic migraineur, taking my medication is not something I normally forgot, at least not for long. I try to just calmly answer yes and go on with the conversation. There are times though, I want to come back with, “No, why would someone with my problem take her medicine? I enjoy being in…

Diana5 replied to the topic Have you experienced side effects from Aimovig? in the forum CGRPs (calcitonin-gene-related peptide) 14 hours, 13 minutes ago

Topomax and CGRP — google it and there are lots of scientific articles. Apparently that is at least part of the reason topomax helps prevent migraines.

https://www.ncbi.nlm.nih.gov/pubmed/15980877
https://www.ncbi.nlm.nih.gov/pubmed/16942474

Cat voted in a poll 14 hours, 14 minutes ago

Cat posted an update 14 hours, 19 minutes ago

depressed and frusterated

Diana5 replied to the topic Have you experienced side effects from Aimovig? in the forum CGRPs (calcitonin-gene-related peptide) 14 hours, 23 minutes ago

I am curious what kinds of visual disturbance others are experiencing. I am not convinced that my recent problems are related to Aimovig, but the optometrist now wants me to see a retinal specialist, and the neurologist wants me to stop Aimovig. It feels like a terrible choice, because life is so much better without migraines!!!

I have been…