Frequent migraine aura with little or no headache...Hi there, I’m 49 years old and started having migraines when I was 15 years old. I’ve always gotten migraine with visual aura, sensory auras and in my teens and...Reactions0reactionsComments12 repliesAura
How Are You… Really?...Jenna Kutcher, a social media influencer, recently released a book titled, “How Are You… Really?” It’s a great read (or listen if you’re like me and love to listen to...Reactions0reactionsComments48 comments
Chronic Migraine and My Life Before...Chronic migraine has impacted my life since 2009. While I had some experience with episodic migraines prior to 2009, chronic migraines changed my life. The person that I was prior...Reactions0reactionsComments17 comments
A Forced Switch in My Migraine Meds...For the last six months, I've been in a really good groove with my migraine treatment. It feels like magic to be able to say that. It's the first time...Reactions0reactionsComments0 comments
desperate pain/ nortriptyline?...Hello lovely people. I'm really desperate, I was admitted to A&E in England on Saturday as the pain was so bad. Jaw/face/neck/shoulders. They gave me a steroid and told me...Reactions0reactionsComments9 repliesChronicTreatmentSymptoms
Migraine with aura...Hi, I've been suffering with migraine with aura, roughly for 3 years now, if I wasn't on propranolol and amitripaline, I'd imagine I'd have them constantly. I had an mri...Reactions0reactionsComments6 replies
Echoes of Migraine Grief...For nearly nine months, I’ve been dealing with a fungal infection in my lungs. Despite the good prognosis — it’s a common infection where I live and I don't have...Reactions0reactionsComments16 comments
Daily Hell...I think when you live with severe chronic migraine I mean migraine that is daily. Everyone stops believing the severity of your pain because your pain becomes normal to them...Reactions0reactionsComments8 replies
Surviving Well with Chronic Cluster Headache Disease...Cluster headache disease can be episodic or chronic. While the primary symptoms are the same, the chronic version can have different presentations that make it tougher to manage. With episodic...Reactions0reactionsComments0 comments
My Migraine Causes and Genetics...Do you know where your migraines have derived from? Migraines can have many causes. Sometimes people start getting migraines out of the blue and are called idiopathic (no known cause)...Reactions0reactionsComments26 comments
Post-COVID Migraine Attacks...I had COVID, likely the Omicron variant, in January 2022. My son, who is five but goes to a preschool with kids too young to be vaccinated, got it first...Reactions0reactionsComments17 comments
What advice would you give your pre-migraine self?...Suffering from migraine disease is awful, but many of us had a life before migraine moved in! Looking back on those days can give us some pretty unique insights now...Reactions0reactionsComments68 repliesTips & AdviceCaregivingAwareness
Presenteeism: Powering Through Our Migraines...Presenteeism is the state of a person being physically available for work, life, or whatever but not having the ability to be as productive since we are not fully functional...Reactions0reactionsComments17 comments
Migrainous Vertigo...Hi I was diagnosed with Migrainous Vertigo in 2018. Horrible attacks were happening. The intensity of those let up last couple years. BUT 5 days ago I quickly started with...Reactions0reactionsComments10 replies
pattern change...I have chronic migraines (53 years) but now that I have eliminated most of my food triggers, they aren't the worst type anymore. I have noticed a pattern change this...Reactions0reactionsComments2 repliesChronic
Cryogenic Therapy...Hi all -- I recently tried a 2.5 minute cryotherapy session (-160 degrees F) on a whim while visiting my daughter. Well. I walked out of there feeling better than...Reactions0reactionsComments8 repliesCopingTreatmentAwareness
Menstrual Migraine to Chronic Daily Migraine...Hi, I have a long medical history of being sick. I had a spontaneous spinal fluid leak that took 5 years to get fixed. The doctor had to go in...Reactions0reactionsComments6 comments
FeaturedIce vs. Heat: Which team are you on? ...Hi everyone! I'm a little curious about something, and I was wondering if you'd help me out. Some people swear by their ice hats that they wrap themselves in before...Reactions0reactionsComments154 repliesTreatmentCopingTips & Advice
Why Retreat to RetreatMigraine?...Retreat. I have wanted to retreat from my own body — but why to RetreatMigraine? RetreatMigraine is an annual event that CHAMP (Coalition of Headache and Migraine Patients) holds for...Reactions0reactionsComments2 comments
Did migraines hurt my daily life?...I am using some medication to treat my migraines, so I want to know more about my it's long term effects...Reactions0reactionsComments4 repliesAwarenessTreatmentTriggers
