Anyone have difficulty speaking during an aura ?...This happens to me occasionally-have had migraines with aura since I was 14 & am now 85. Have recently had 18 months free but yesterday short aura with aphasia really...Reactions0reactionsComments4 repliesAura
Looking for Dr in southwest Pennsylvania ...I'm in the Pittsburgh area. I need a new specialist. I've already been to Dr Kaniecki at the Pittsburgh headache specialist at UPMC. Does anyone have a good Dr? I...Reactions0reactionsComments11 repliesHealthcare TeamCaregiving
Words and thoughts...Hello, I'm new to the forum. I'm wondering if anyone else experiences difficulty remembering words when they have an aura migraine and difficulty saying certain things as well??...Reactions0reactionsComments13 repliesNewly Diagnosed
Is Migraine Disease in My Family's Genes?...A quick Google search of this question returns millions of results in under a second. I knew from my personal experience that there is a genetic link to migraine disease...Reactions0reactionsComments0 comments
A Letter to Those New to Migraine...Dear friend, I heard you've been dealing with migraine attacks and symptoms for the first time. It can be a tricky disease to navigate, so I'm writing this in the...Reactions0reactionsComments0 comments
Is migraine a disease or a condition?...Migraine is a complex primary headache disorder, that much is true. But, when looking at migraine at a higher level, does disease or condition better fit? Which term do you...Reactions0reactionsComments17 repliesAwareness
Bi-Lateral Greater Occipital Nerve Route Block ...Has anyone had seizure activity/side effects after receiving these injections?...Reactions0reactionsComments35 repliesSide EffectsTreatmentSymptoms
Confusing Term: Cluster Migraine...I live with both cluster headache and migraine disease and they are two completely different things. The term “cluster migraine” is still used somewhat frequently in the community and when...Reactions0reactionsComments11 comments
My Migraine Journey...It started with pressure building up in my head before storms. When the rain came down, I would feel almost euphoric relief from the pain. It became lingering headaches throughout...Reactions0reactionsComments4 comments
Detoxing from Topamax - any advice?...Hi there, I've been on Topamax for a decade, and it's done well to (mostly) keep my migraines at bay. I have suffered from Hemiplegic migraines since I was 12...Reactions0reactionsComments3 repliesTreatment
From Childhood to Adulthood: A Journey Through Decades of Migraine Attacks...It’s been about 35 years that I’ve lived with migraine. My first attack was in elementary school when the teacher – and school nurse – thought I just didn’t want...Reactions0reactionsComments0 comments
Reference to illness in a holiday card...Hi, friends! My husband and I were picking out Father's Day cards today, and we were surprised to find a card that referenced chronic illness. Something to the effect of:...Reactions0reactionsComments5 repliesAwarenessCopingFriends & Family
Sumatriptan and sun sensitivity ...I’ve had migraines since childhood, I’m now 50.. for the last 11/12 years whenever I’ve been on holiday in the summer to a place where the sun is strong I...Reactions0reactionsComments7 replies
What foods trigger your migraines?...I stay away from msg, and chocolates and nitrates/nitrites, but what other foods tend to set you off? I’ve been migraine free for months and all of a sudden I...Reactions0reactionsComments7 repliesDiet & Nutrition
The Language of Migraine: How Do YOU Describe It?...The way we discuss and describe migraine can be so individual to our experiences. Some people find that certain terms and phrases contribute to the stigma and misunderstanding surrounding migraine...Reactions0reactionsComments0 comments
experiences in MOS, or not responding to RIZATRIPTAN, after discontinuing years of,sumatriptans???...Reactions0reactionsComments1 replies
Bacterial Meningitis and the Skull-Crushing Migraine That Ensued...I’ve struggled with migraines for most of my life. I’ve gone though periods of time where they were manageable, and there have been times where I’ve been down and out...Reactions0reactionsComments0 comments
Spinal Cord/Neuro Stimulators...I would love to hear from the community about experiences with SCS. I did a trial for the Nevro back in 2019 that was unsuccessful. In 2023 I did a...Reactions0reactionsComments4 repliesSurgeryChronicTips & Advice
Relief…. Finally After 40 Years...My first migraine was at age 10. Migraine frequency and intensity increases significantly after age 40 (3-4 a week with intensity, 6-10... with 8 landing you in the emergency room)...Reactions0reactionsComments1 replies
Thunderclap Headaches...Back in October of 2023 I was diagnosed with thunderclap headaches, which feel like a freight train going through my head. Instead of my husband consoling me, he stood there...Reactions0reactionsComments16 replies