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I registered and came to this site this morning. I quickly realized how blessed I was.

I have been afflicted with silent migraines since retiring 17 years ago. I have been taking Embality for about three years. I came to this forum because recently I have had an increase in frequency of episodes. After spending just a few minutes, I quickly realized how blessed I was to have such a minor affliction. I never have headaches.
I also wanted to offer some feedback to others regarding one significant improvement I had in February, 2025 because my neurologist continued to nag me.
I had been diagnosed with obstructive sleep apnea but didn't want to start using a CPAP machine. Up until this point, I had been diagnosed with vestibular migraines with dizziness attacks every day. About three months after starting use of the CPAP machine, my dizziness attacks ceased completely. So I would encourage anyone who snores while sleeping to have a sleep study. It's worth your time.
Back to my question. When I started Embality, I was experiencing 14 silent migraine episodes/month. About three months after starting this CRGP inhibiter it decreased to 9/month, and had been very stable until this past July. Since that time it has increased to 11/month.
Is this unusual? Is it worth changing to another CRGP inhibitor? FWIW, I have no other side effects from the Embality injection.

  1. Hi , we're glad you found us! Acephalgic migraine is no joke becaise there is no pain. I've had migraines since 15, and had my first silent migraine about 9 years ago, sadly, on vacation. I was sure I was dying! I'm glad you found the CPAP helped with the vertigo!

    Our bodies do change over time, so our reactions to medication can as wel. Since the various CGRPs have different mechanisms, you might benefit from a change. It's something to discuss with your doctor for sure! Please keep us posted! -Warmly, Donna (Team Member)

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