mish22
"IT HAS BEEN A WHILE SINCE I POSTED . I AM CURIOUS HOW MANY BEOPLE DEVLEOPED A PERSONALITY CHANGE AFTER HAVEING SEVERE MIGRANES ALL THERE LIFE ? ANXIETY , MOOD SWINGS , ANGER , NOT TOLERATERATING PEOPLE AND STUPIDNESS . I CHANGED MY ZOLOFT THAT I WAS ON FOR LIKE 15 , 20 YEARS TO FLOWVOXAMINE IT NORMALLY WORKS BETTER AND I FEEL BETTER ALL READY . THANKS"
Hi
, thanks for sharing your update. I'm so glad to hear that you're starting to feel better on the new medication. You're not alone in having some mood changes with migraine. In fact, some of our health leaders have written about this very thing, https://migraine.com/forums/mood-change. And we do have this editorial also about mood changes, https://migraine.com/migraine-symptoms/mood-changes. Finally, one of our members mentioned some personality changes as well, https://migraine.com/stories/sleep-study-may-explain-and-relive-from-migraine-pain. Hopefully more of our community members can share their personal experiences with you as well. Wishing you a gentle day! -- Warmly, Christine (Team Member)
"Hello friends sorry been a while . The latest news I have confirmed with my neuro and A lady up there in the health dept . It was not my imagination the Covid Maderna shot has maid my migraines worse . apparently they all are causing inflamation through out our bodies not every one but enough . So today i suggested to get a prednisone low dose pack to do for a week . And they also gave me a new med that is out there you take it in the am called qulipta its free patient assistant , i guess if you are on medicare or ssd . check it out . you can take it with Ajovy and many others . ok will let you all know how it goes and let me know if you are getting more headacehes since you got the shot .. lv and peace . Mish."
Thanks for the update! It's always nice to hear what is going on with our community members. I have heard from quite a few people that the Covid shots have made their migraine attacks worse and increased in frequency as well. Asking for prednisone was a good idea as it is used frequently to help break a migraine cycle. I hope that it works well for you. I also hope the new medication works well for you too. Thanks for the information for Medicaid and SSD folks. I'm sure it will be helpful. Please keep in touch. Warmly, Cheryl migraine.com team
"sore had injections in my back yesterday .. I want to share to all of you . I have had Migraines all my life from age 8 now 51 . Six years ago i had a MRI it was normal . 2020 Had a MRI and I have white matter disease and my neuroligist blames it on the migranes ... I went to get tested for several skills and i underperformed big time . Get your mri s done at least every 5 years of your brain i would say . Especially if you find your self forgetting a lot like i do . Woman friends going through the changes will bring on headaches but torwards the end like the 8 the month i think they start to get better . My main problem is occipital Migraines .. BEWARE OF ABLATION !!! they do not tell you that you can come out of it in constant pain .... like i did with nerve damage ... And nerve blocks can aggravate the nerve it is just a quick fix for most of us . The doctors will push them on you , but listen to your body . Don't do it if its not lasting and the headaches come back worse ....Ajovy seems to be good .. you can get on patient assistant pretty easy one person can make up to like 50k . They Fedx it to your door . Good luck .. God bless my friends.. MP"
Hi @mish,
Thank you for sharing your journey with us. It sounds like you've been through a number of things to help prevent migraine attacks, you're not alone in this.
You've made a great point about listening to our bodies - it's so important when living with chronic illness.
Wishing you a low pain day,
Nancy Harris Bonk, Patient Advocate/Moderator, thank you again for sharing this wonderful status update with us with so much wisdom from your journey. I just wanted to stop by and see if you feel like sharing an update with us? If you are up to posting a new status update or replying to this one, we would be interested to know how you have been! Warmly, Melanie (team member)
"A little tire Fibro has been crazy. Must be the humidity here in Fl ..i wanted to mention to every one . If you are considering Ablation for neck nerve pain occipical neralgia and i know i spelled that wrong i take topamax lol.. Any way i did it a long time a go , and the dr i had a very good rep and you sing these papers and you dont see the fine print that says ""You can wind up in PERMENENT PAIN .''' And that is what happened to me . So Ajovy actually helps and gabbapentin 1100 mg i take bid .. So i take 2 stupid meds besides others .. Ok friends just wanted to share that with you alllllll....."
Hello mish, thank you for sharing your experience with us. I hear what an awful outcome you had with your nerve oblation. I'm glad you have found other treatments that are helping to manage the pain. You are not alone living with both fibromyalgia and migraine. That can be a difficult combination to manage. I hope your current flare begins to ease for you soon. Know we are here to listen anytime you need support or a place to vent. Wishing you a gentle day. ~Allyson (Migraine.com team)
Hi Allyson ,
That was very nice of you . My mom is my best friend she never gets tired of my complaints . My brother is in some kind of stage in his life he does not want to here anything negative . And its sad i know he has a stress full job , but I feel like i can't talk to him like i used to . Thank God my mom is in better shape then me . I do not know how i will make it with out her by my side she is an Angel .. I am in Fl , and its a hot state now . I find swimming makes me feel better . What state are you in ? I do pretty well after having all this for so long you get to know a lot .. lol.. talk to you soon . michele.