How to Build Relationships with Chronic Migraine...Most people I know have lived their lives without ever having a migraine attack, much less living with chronic migraine. As somebody who has been living with chronic migraine since...Reactions0reactionsComments5 comments
Listening To My Body...I was always told to wear shoes to keep my feet in good condition, I listened to my well-wishers and wore shoes whether they fit my big feet or not...Reactions0reactionsComments1 comments
Loss of Family = More Migraines?...Well, I am so worn out still, and grouchy and the migraine is messing with me. My husband lost his mother in the beginning of August and we were able...Reactions0reactionsComments2 replies
For Namesake...Since March 2023, I started using the phrase "two dozen symptoms" instead of calling it migraines or sickness or illness. Terms like illness and sickness had some terrifying power as...Reactions0reactionsComments1 comments
Navigating Life with Auras at Every Corner...Auras are something that many of us have to fight through. These visual disturbances can range from an annoying fly on the wall, to a dark omen for what’s to...Reactions0reactionsComments3 repliesAura
Conversation of the Week: Emergency Room Visits and How to Avoid Them...Have you been to the emergency room for migraine? Many of us are forced to seek care in the emergency room when our preventative and rescue treatments fail us and...Reactions0reactionsComments8 repliesTips & AdviceCoping
What Happens When Your Headache Disorder Gets Better?...I’m in that strange but euphoric phase of life where breastfeeding hormones keep my cluster headaches and status migraines at bay. It’s been three and a half months since my...Reactions0reactionsComments38 comments
Migraine ...Does anyone experience cracking noises in one side of head -i get this often but without aura - iv had migraine with aura for years but for past few months...Reactions0reactionsComments4 replies
6 Tips to Always Be Prepared for Your Chronic Illness...As people with chronic illness, it is important to be proactive. There are many steps that one can take to do this. We are our best advocate and, as we...Reactions0reactionsComments12 comments
Side effects botox for migraine...Hello. I just had botox for chronic migraine. Shortly after the injections I developed significant pain in my trapezius muscle and neck. I also got significant chills that night, so...Reactions0reactionsComments6 repliesBotox
Acupuncture ...After having tried nearly everything preventive (except I have a gut feeling against Botox for me), I tried acupuncture. After 7 visits over 2 months, I went from 15-18 migraine...Reactions0reactionsComments1 repliesChronic
When Migraine Hits Our Self-Worth and Social Circle...Living with chronic migraine is an intensely painful physical condition. The severity and frequency of pain and related symptoms can bring us to our knees. Migraine has a less-frequently discussed...Reactions0reactionsComments26 comments
Several visual disturbances a day...So, I am 66 and way past menopause so my hormones left me awhile ago. Been part of the migraine with aura club since I was 10. Without my long...Reactions0reactionsComments1 replies
How Effective is Combination Therapy for Migraine Management?...The quest for effective ways to manage migraine disease for me has been long and progressive. In the early days of my seeking treatment, I was inexperienced. I knew what...Reactions0reactionsComments3 comments
When Is the Last Time You Were Pain-Free?...A few days ago, I experienced a complete break from pain. A three-hour window of zero pain. It was shocking, incredible, and ultimately, heartbreaking. As someone who has experienced some...Reactions0reactionsComments82 comments
Pregnant Women Deserve Pain Relief...I was pregnant for nearly all of 2023, between a full-term pregnancy and a miscarriage. Being prone to status migraines linked to hormone changes and episodic cluster headaches, I spent...Reactions0reactionsComments1 comments
Aura while dreaming and actually having an aura!...Hi! Just joined. I've been a lovely receiver of wonderful migraine disease for 30 years now! Yay me...😝. I get to enjoy the wonderful aura of blind spots to full...Reactions0reactionsComments43 repliesAura
Lots of rest and alone time avoid notices and light...I have been getting migraines since 2004 after my car accident in 2011 I was rear ended on my way to work I had a brain injury my brain shifted...Reactions0reactionsComments1 replies
I'm confused on a right occipital nerve block - should I get it?...My neurologist wants to do a right occipital nerve block with out a sedative. And I'm allergic to steroids. So I'm concerned. He said he would do the first one...Reactions0reactionsComments5 replies
