Organizing My Medical Records and Advice for Others...Whether you are a chronic illness patient or someone who just has a Type A personality, I feel organization is important. There are a lot of advantages to keeping detailed...reactionscomments
How to Discuss Trying a New Therapy With Your Provider...Back in my early twenties, I would get frequent headaches, which led to several ER trips. I dreaded the long wait time and the constant noises adding to my already...reactions1comment
"Uncured" meats?...So we had ham for Christmas. We made sure to get one that said uncured. But I have a migraine. I've been doing a little reading. And it looks like...reactions1replyTriggers
What Are My Migraine-Friendly Tips for Driving?...Driving an automobile is a privilege and a big goal for many people. As a teen, I couldn’t wait to get behind the wheel and experience the freedom and independence...reactionscomments
Red and dropped eyelid...Does anyone get red and dropped eyelid with migraine? Is it normal?...reactions15repliesChronic
Vocal and physical tics...These occur only in the context of migraine prodrome and aura. Another weird symptom is my voice becomes very weak...reactions18replies
I've had a constant migraine headache for 24 years. I'm 69 now....I've been to headache specialists, headache hospitals, and taken every kind of medicine including Oxycodone and Fentenal and most every other kind of medicine, along with Botox, nerve blocks and...reactions18repliesChronicCoping
Tinnitus and pulsating Heartbeats in your ears!...I am a 70 year old woman who has experienced migraines since age of 14. Earlier this year I started getting tinnitus and heavy pulsating heartbeat in my ear (...reactions7repliesSide EffectsSymptoms
For Women...I'm a 77 year old woman and have had episodic migraine with aura since I was 12. In my late teens, I noticed that within 24 hours of getting a...reactions1replySymptomsSide Effects
Weird symptoms ...My migraines have changed symptoms as I have had them since a child. Now at 55, I’ve gone through menopause which helped, and ironically through cancer and my migraines lessened...reactions1replySymptomsChronicDiagnosis
Seeing the World Through Rose Colored Glasses as Migraine Treatment...I went to see comedian Bobcat Goldthwait and he did a whole bit about his rose colored glasses. He sometimes wears red tinted glasses as a fashion statement and says...reactionscomments
Vyepti infusion and dreading Christmas...I had my first Ivy Vydpti infusion yesterday on day 38 of the most severe migraine (NDPH) attack I’ve ever had. My consultant put me on Atogepant but that just...reactions5repliesCopingChronic
Walton Centre Head Ache Diaries...Hello I was wondering if someone could help. I am completing my headache diaries (Walton Centre) and there are 3 categories. Clear, mild/moderate and severe. My question or rather a...reactions2replies
Advocating for Migraine Accommodations at Work...Managing migraine is a full-time job in itself. Between the doctor’s appointments, endless calls to insurance, trips to the pharmacy, and of course the countless days of pain and other...reactionscomments
My Journey...I was referred to a neurologist due to the severity of the migraines. He ran some tests, prescribed gabapentin, which had no effect whatsoever. Then he decided that I needed...reactions1reply
You’re Tired? But…You Don’t Work!...How is life treating you? Are you a student in college student working a job? Are you a mom or dad, that is taking care of the family? Maybe you...reactionscomments
How I Use Patient Portals to Manage My Healthcare...Navigating your care plan in today's healthcare system is a frustrating task. If you live with multiple conditions, that adds layers atop a precarious stack of medical records. Many medical...reactionscomments
Unusual trigger?...I was shopping for groceries with my daughter. When we were done, before we left the store (Wal-Mart), I stopped at the bathroom. Right next door in the men's bathroom...reactions3repliesCopingTips & AdviceTriggers
Reuniting with My Headache Specialist...I got my first migraine as early as seven years old. I was in elementary school with a debilitating migraine that had me vomiting to the point of dehydration –...reactions1comment
Multi-Day Migraine Attacks...Multi-day migraine attacks can be exhausting and interrupt all aspects of life. How do you get through a lengthy attack? Whether you're in the midst of one or in postdrome...reactions28repliesTips & AdviceCopingChronic
